Thank you to everyone who donated to get Hunter his TinyTrax powered wheelchair. We appreciate every single one of you.

Hello! This is my son Hunter. We live in Andover, Hampshire. He is 2 years old and was diagnosed with Spinal Muscular Atrophy, type 1 at 3 weeks old.

He received life changing treatment at 5 weeks old called Zolgensma, more commonly known as Gene Therapy. This is a one off IV infusion which works by replacing the non-working SMN1 gene with a functional one. This treatment is incredible but it comes with huge risks to the heart, liver, kidneys and platelets.

Hunter is working hard daily to build up his strength. He can now sit up unsupported, hold his head with good posture and roll over. So far this is such an achievement as when he was diagnosed the doctors and health professionals said he may never be able to smile, laugh talk or hold his own head up. He is having physio once a month and hits a target of over one hour a day in his standing frame. Most of Hunter’s equipment is provided by Hampshire equipment services, free of charge, which we return when he’s too big. However, with Hunter growing his independence and soon to attend a pre school, 6 hours a week from September, we are trying to raise funds to buy him a powered wheelchair called TinyTrax. This will be suitable for up to 10 years roughly.

We took Hunter for a demo in Bristol and he loved it. I wasn’t expecting him to be able to control it straight away but he managed to go forwards, backwards & go round in a circle.

We appreciate anything you could donate to help us get a powered wheelchair for Hunter & thank you so much for taking the time to read his story.