Our perfectly healthy baby Jovi, was diagnosed with an extremely rare, and very severe genetic disease called SMARD1 (Spinal Muscular Atrophy with Respiratory Distress). His first signs of this disease was a sudden loss of breath on Christmas Eve, resulting in a paralysed diaphragm, and collapsed lungs. 3 weeks later, our little boy was defeated by SMARD1 and grew his wings. This disease is so rare, (only around 100 confirmed cases in the world) and currently there is no treatment or cure, however Jovi was sent to this world with a message and we believe we can help improve the outcome for others diagnosed with this disease through SmashSMARD. Your donation will go directly to this Foundation in memory of Jovi John Williams in hope to find a cure for this disease!

Jovi, your life may have been short, but your journey has just began!