Leap with us for PWS -

From the deepest place our my hearts - thank you.

By donating, you’re not just supporting a fundraiser—you’re standing beside our son Kylo, and every child living with Prader-Willi Syndrome. Your generosity helps fuel research, resources, and hope for a better, more supported future.

This skydive is my way of facing fear—because Kylo faces challenges every single day that he didn’t choose and he faces them with strength, love, bravery and resilience.

Prader-Willi Syndrome is a rare, lifelong condition that affects how his body works, how he feels hunger, how he grows, and how he experiences the world. Despite it all, he is the happiest most content little boy.

I’m afraid of heights.

But I’m choosing to jump—to turn fear into purpose, and to raise awareness and funding for children like Kylo.

Your donation is part of that leap. I’m beyond grateful for your kindness, your belief in this cause, and your willingness to help carry this mission forward. Together, we’re making a difference.

More information about Prader-Willi Syndrome Association: We're the only charity in the United Kingdom supporting families living with Prader-Willi Syndrome. We offer a dedicated support team who are often required in times of crisis, as well as our Community social events which give families an opportunity to meet friends, old and new in an understanding environment. Individuals with Prader-Willi Syndrome also have the chance to make relationships that last a lifetime.