Hi everyone

My name is Laura and I am doing one of the biggest challenges ever and participating in an 11,000 feet charity tandem skydive on August the 31st 2025.

This is all in aid of Amy and Friends a charity very close to my heart . Amy and friends supports children and their families who suffer with Cockayne Syndrome and Trichothiodystrophy. They offer advice, support, advocacy and purchase equipment when necessary. As some of you know my amazing Godson Tom who is 16 years old has Cockayne syndrome and over the past 7 years since diagnosis Amy and Friends has been beyond incredible and a lifeline to our family every step of the way .

Amy and Friends provide 24/7 support via an online private forum.

Weekly they provide home visits to families, giving parent/carers/siblings some vital respite. They also run a variety of online sessions including, wellbeing/relaxation, meet/chat, and counselling. Family fun activities – sending out activity packs, care packages, and obtain specialist equipment and wishes from outside organisations.

Twice monthly they organise transport and an overnight stay for families who are attending the Rare Disease Centre in London. They accompany 10 patients and their families who are seen each month.

Annually they host a family/medical conference, providing support, specifically designed activities, that cater for each family member and their specific needs. Clinicians and scientists come together from across the globe to meet families, provide information on up to date research and existing studies.

They continually take part in research programmes across the world, this enables scientists and clinicians to improve their knowledge of DNA repair disorders. They have been instrumental in providing information towards medical papers, developing care plans, leaflets and specific growth charts.

However their incredible work cannot continue without support and fundraising and this is why I want to give back and raise as much as possible to ensure they can carry on the amazing work for all families across the UK and beyond.

Thankyou in advance for all donations made ,I can assure you that every single penny will make a huge difference to the lives of families supported by Amy and friends .

If interested in finding more information about the Charity feel free to go to:

www.amy and friends.org or find them on Facebook

Wish me Luck and Thankyou for all support in advance