Kobi-Jayce trisomy 21 journey

Hi my name is Lauren ☺️ I have 4 children a 6 year old, a 3 year old a 1 year old and a newborn at 16 week pregnant I found I was pregnant with my 4th baby, this wasn’t a planned pregnancy and was certainly a big shock as I already had a 9 month old at home! The same day I found out I went for a gender scan and found out that my baby was another little boy, I never got to have my 12 week scan but had every other scan after and also had extra growth scans up to 32 weeks not once was anything mentioned on any of my scans or anything regarding Kobi or any concerns. At 33 weeks I went into natural labour, I went to the hospital having contractions which had never happened to

me before I’ve always been term with all my

other children, so I was absolutely petrified I couldn’t thank the midwife’s enough for the support and advice they gave me through my whole experience of labour, 4 hours of labour and my little boy was born 7 weeks early weighing 5lb 2 I literally spent 5 mins with my baby before he was whisked off to neonatal care.

that’s where our journey began, we was never prepared for what was about to happen to our life’s and the news we would receive. After a few days of been in the neonatal I went to visit my baby and the doctor came and explained that they had concerns for our baby, and they wanted to test his for Down syndrome, I was absolutely lost for words and honestly didn’t no what to say!

on Friday the 27th of June they did the test and sent it off and all we could do was wait to see what the results came back saying.

days passed and I couldn’t stop thinking about it and looking at photos questioning the symptoms and looking at info online, in some photos I could see it and in others I couldn’t

on Tuesday the 2nd of July I got a call from the hospital saying they had received the results and that they was positive for trisomy 21, I was heart broken, I was numb I was confused I just couldn’t help but cry

Kobi was in an incubator but over the days I’d been in hospital he was doing amazing and they got him into a cot, he wasn’t on any extra support with his breathing or any fluids he was also starting to feed from a bottle I was so happy and hopeful. The next 24 hours then changed, Kobi had spent the night unhappy and unsettled, got himself all worked up and his breathing was too fast, he wasn’t doing so good and the hospital decided he needed a break so they put him back on air flow to give his lungs a rest they also popped him on a IV drip and some antibiotics as he was really snotty, my poor baby was back to square one

today Kobi is still in neonatal and he’s doing okay, we have found out that he has a murmur on his heart and this also has a medium sized hole, we are unsure of the risks at the current moment or if it will close by itself, which fingers crossed and praying it does!

leaving my baby at the hospital is some what the most surreal thing I’ve ever experienced, it is so hard to have other children at home

and a baby in hospital I’ve always come home with all my babies so this time was really odd and I felt so empty I cried and cried but my other babies needed me too so I had to stay positive!

I posted a video on tik tok which went crazy and a lot of people have asked me to make a go fund me as the cost of travel to the hospital for me has been such a strain, and then all the stuff I need to buy and also the extra costs of fuel and parking and other things have literally left me pocketless

today is my birthday, not like any other it doesn’t feel the same, nothing feels real at the moment but I’m taking every single day as it comes and praying for the day my boy is home where he belongs!

thank you for reading