UPDATE : I want to thank everyone that has donated. We were able to get one of the issues with our van fixed with what was donated. We just put a new transmission in it less than 7 months ago, it is now going out AGAIN!!!! I know it is a HUGE ask, but we are at the point of having to purchase something else that is DEPENDABLE!

We still owe $ on the van, and my parents helped us get it, so we are in a hard spot AGAIN.

Please share!!! I HATE asking, but please share!

For anyone that knows me, I am not one to ask for help. As a parent not being able to provide for your children is not a feeling i would wish on anyone. Unfortunately at this time in my life I HAVE to. Our van has been in and out of the shop and needing fixed over 5 times in the last 6 months, I posted about our ER visit and our van completely breaking down in Tulsa while we were there. We got it home to the shop, but dont know if or when it can be fixed. We HAVE to have a reliable vehicle to get us to Charley's appointments,Paisley to school and all of her sporting events, and just be able to go anywhere as a family. I haven't been able to work for 3 years due to being Charley's caregiver, ( also the state of Oklahoma only passed a law in February that parents can get paid to be caregivers, but the child has to be 3 and you have to wait for your turn to come up on the list.....we havent gotten there yet) and in those 3 years we have exhausted every avenue for other financial things that have came up. I dont like feeling like a charity case, so this is my last resort.

For those of you that dont know us, our daughter was born with unknown medical complexities. After a CRASH C-section she had to be resuscitated 5 times, after seeing her I knew something was wrong, but the hospital told me she was good to go. After 3 hours of getting to hold her and love on her, they came to try and get more blood for testing and she aspirated on the table they had her on, the nurse left her there aspirating while she ran to get another nurse, they gave her oxygen and ran her out of the room, the next time we got to see her she was in what I call the human toaster, going to get transported to another hospital with a NICU. We got there they ran all their tests and came back with MULTIPLE diagnosis they couldn't help with in their hospital, so we got transferred to a children's hospital. We got there and they confirmed her diagnosis of Dandy Walker Malformation, Crainialstinostisis,(she had a Crainectomy at 3 months to correct) microgastria, low tone, and vision and hearing impairments. On the day we were suppose to get to go home, she aspirated again. They took her for a swallow study, found out she is a silent aspirator, so she got her G-tube ( feeding tube) the next morning. At 1 we found out she was Epileptic. We now know at 3 and several medications later that she has Lennox-Gastaut Syndrome. We also found out a little over a year ago after being in the hospital at LEAST 1 week out of every month if not longer, she was diagnosed with An Antibody disorder, now we do an infusion at home every other week.

Its crazy that none of her diagnosis were seen or figured out until AFTER she was born.

She cannot walk, talk, or crawl, but we are learning to eat and drink by mouth, which is an amazing accomplishment!

We see a Primary Dr., Neurologist, Nerosergeon, Gastrointerologist, Immunologist, ENT, Pulmonologist, Speech Therapist, Occupational Therapist, Feeding Therapist, and a Physical Therapist.

All of these people with the exception of her Primary Dr are an hour and a half drive away from us. Unfortunately, with all of her diagnosis, no one closer will see her, which is ok, we have built great relationships with all of her therapists over the years! They are all amazing people!

Any help whatsoever would be GREATLY appreciated.

Also have a Pay Pal set up. Its under Amy White its my daughter's sitting in a yellow tiny train car.

I also have Facebook pay