Hello, my name is Daniela, and I'm reaching out to you on behalf of a family very dear to me in Ecuador. Today, I share with you a story of immense courage and urgent need. Boris, a resilient young soul, has been fighting Common Type B Acute Lymphoblastic Leukemia since 2015. His journey is marked by relentless treatments, serious infections, and multiple relapses. Through it all, his will to live and spirit of hope have shone brightly.
In July 2023, Boris faced another daunting setback — he relapsed for the second time. Currently, his condition is Common Type B Acute Lymphoblastic Leukemia in second relapse, with a positive Philadelphia chromosome mutation — a condition that significantly complicates his treatment and recovery.
However, we've reached a critical point where conventional treatments are no longer viable due to the cumulative effect on his body. The only path forward is a cutting-edge biological therapy known as Blinatumomab, accompanied by DASATINIB 100mg, which he needs to take indefinitely at a cost of $3,400 for a 30-pill bottle. These advanced treatments, along with a vital bone marrow transplant, offer a beacon of hope. The expenses are astronomical and far beyond our means. The Blinatumomab therapy alone costs $162,000, requiring 12 vials for the initial phase at a cost of $54,000, with potential additional doses if remission is not achieved, leading up to the total medication cost of $162,000. Furthermore, the bone marrow transplant abroad, as this procedure is not available in Ecuador, ranges between $200,000 and $400,000. These costs do not include ongoing and related medical expenses, creating an immense financial burden for his family.
We bring you hopeful news that marks a turning point in our journey. Thanks to the support and advocacy from all of you, the insurance will now cover the costs of Boris's vital bone marrow transplant surgery in Spain. This incredible development alleviates a significant portion of our financial burden and allows us to focus on what comes next.
While the surgery is covered, Boris and his father (the donor) face a lengthy recovery period of 10-12 months in Pamplona, Spain. During this time, they will incur substantial living and accommodation expenses. The reality of these costs brings a new challenge: supporting Boris and his father while they are away from home and focused on recovery.
We are now shifting our fundraising efforts to ensure that Boris's family can manage these additional expenses without the stress of financial strain. Here is how you can help:
* Support Our New Goal: Every donation will directly assist Boris and his father with the living expenses during their critical recovery period in Spain.
* Share Our Story: Continue to share Boris’s story. Awareness leads to action, and every share counts.
* Encourage Our Hearts: If you can send a message of support, it would mean the world to Boris and his family during this challenging time.
Your generosity has already made a profound impact, and we are deeply grateful. As we move forward, your continued support is crucial for Boris’s recovery and well-being. Please help us keep the momentum going.
Thank you for being our partners in hope and healing.
we bring you hopeful news that marks a turning point in our journey. Thanks to the support and advocacy from all of you, the insurance will now cover the costs of Boris's vital bone marrow transplant surgery in Spain. This incredible development alleviates a significant portion of our financial burden and allows us to focus on what comes next.
While the surgery is covered, Boris and his father (the donor) face a lengthy recovery period of 10-12 months in Pamplona, Spain. During this time, they will incur substantial living and accommodation expenses. The reality of these costs brings a new challenge: supporting Boris and his father while they are away from home and focused on recovery.
We are now shifting our fundraising efforts to ensure that Boris's family can manage these additional expenses without the stress of financial strain. Here is how you can help:
* Support Our New Goal: Every donation will directly assist Boris and his father with the living expenses during their critical recovery period in Spain.
* Share Our Story: Continue to share Boris’s story. Awareness leads to action, and every share counts.
* Encourage Our Hearts: If you can send a message of support, it would mean the world to Boris and his family during this challenging time.
Your generosity has already made a profound impact, and we are deeply grateful. As we move forward, your continued support is crucial for Boris’s recovery and well-being. Please help us keep the momentum going.
Thank you for being our partners in hope and healing.
Organizer
Daniela Armijos
Organizer
Miami Beach, FL