My warrior is now my angel above

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My warrior is now my angel above

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Hi my name is Stacey Johnson.


First off, this is why i am doing this for my warrior that has been battling a rare and harsh cancer called rhabdomyosarcoma since may 2022.


I am doing this cause I care about NOW not when he is 5ft under. I care about seeing him smile NOW and live rest life healthy and happy! As it is unknown ...


Aa well as so i can continue to provide and feed my family .


Thanks to our community that's helped so much last 2 years- I've never been so happy to call this small town my home!


I was able take him to fluffy other day on the 10th to corpus to see him .. Aaron wanted a shirt, I told him I'll order it but I said that cause I have absolutely no funds to buy it...

it breaks my heart I can't get him anything he ask for ... or do more as a family together with him.

he most simple kid and no idea time has left as we live off faith and hope...


but that is why I'm asking for help.

I also refurbish so feel free to follow me on Facebook, as I ship my smaller items as well.

I prefer to work but it normally goes to food and gas and never anything extra....


I post his stories on my personal page


Stacey Johnson


work on my refurbish page

Re-BeautifiedbyStacey


Below long yet brief summary of my warrior Aaron espinoza.

From may 2022 to Nows update


April 2022 was process getting our first home, life was good finallly- debt free and relieved


but may 2022 before my middle son ended 7th grade he was starting to have headaches and that alone is not normal for him... then noticed little bump in his gums...so was thinking wart or cyst.... then one day came home from school and it grew to size of a gulf ball over one day ..yes that's how harsh his cancer is


so took him to dentist since it in his gums area, as soon as they saw him they mentioned "tumor" I cried... they referred us to a Dr in corpus that works on mouth and once he took his sample of the inside in June 2022 he said ok 2 weeks

well 2 weeks went by and I took him back and aarons eye was as big as first pic... but the Dr said sorry still no result

so instead of this fool referring us to higher Dr he kept saying no no I can do surgery I just need know what type tumor it is....

July comes and still nothing as I'm getting mad and worried even more....


July 3rd 2022 I took him to driscoll and as soon as got there they said " we sending you to Ms Anderson" I'm like ughhhh ... and freaking out


so midnight the beginning of July 4th we rush finally to MD anderson and get there 4 in the morning and so much rushing going on ....

There we stayed for 2 weeks... in that 2 weeks we found out stage 3 rhabdomyosarcoma

he had started his 1st round chemo July 12th as well as feeding tube etc...


was told this a very rare and harsh cancer that had little to no outcome and no real treatment plans and that alone broke us deeply.


July 17th we went home and had driscoll drs be his chemo drs ... he had lot Loss of blood issues and was there alot at first to see why...


I had lost my job due to this and we had literally just got our new home ...my depth was paid off everything was good then poof, now I'm filing bankruptcy on my cards and loosing it all, cept our home I'm still making ways for our home as it gives him his own room to rest in.... he has 2 other brothers one younger and one older.


between July 2022 and June 2023 he had year of chemo (3 different treatments and none of them worked)


in this time he also had to do home school for his 8th grade year and he was very bummed

but he passed it all and showed eveyone could do it even with chemo in his body


December 2022 to Feb 2023 my son and I lived in Houston for 6 week proton radiation...

it didn't shrink it either like they hoped

it just burned his face and neck and ruined him even more


June 2023 one our check ups found out that the radiation did kill the huge tumor and was told they could do a massive 14 hour surgery and that moment some relief


july 6th 2023 they took calve bone out his leg, took bunch tissue, took veins out legs for the reconstruction, took out all his top right teeth and pallet and made new one with the other body parts

it was BIG


once over told the cancer was out and we had so much hope .... came home after a week in icu and he was told he can go back to school in person for his freshman year

that was highlight of his life


Once school started in Aug 2023 he started growing bumps in face... Dr here for the second time was WRONG about my son and told us it wasn't cancer... till we went for follow up in September 2023 and told yes his cancer came back within month of his huge surgery


that's when he got on alk pill and we started all the home remedies and started anything we could


it all started to work and had hope again

my son enjoyed freshman year all honors classes and felt normal again...


November 2023 his face started to open up from surgery he had and drs wouldn't fix him due to pills he got on they told us to cover it and clean it daily so we did and still do to this day


they won't fix anything due to pills


my poor son been wearing bandage since Nov 2022 and all did was open more and more as time began ...

we mad they wouldn't fix it


Unfortunately April 2024 he noticed small bump again inside neck and was told another tumor as well as small ones round his head frame


by June it was golf ball size

it felt like may 2022 all over again

except this time with no hope


drs are having my son live out his life way he wants to and he only cares about school

he's in 2 college classes and rest honors


it's what he loves as he wants to be an engineer


I get more and more heartbroken as the tumors have taken over his whole right side

just don't like to show the close up of it


yet he is still smiling and still living and still hoping

knowing they can't do anything more ...

we still do remedies to keep his body fighting, but it's hard as I had to leave my job and haven't worked in over 2 years.

my husband does but doesn't cover everything.


we went back October 8th 2024, Dr flat out told us we don't need to go every 3 months nomore unless we want to.

As the tumors have taken over his whole right side of head. The big tumor is in his neck sticks out massive as he wears bandage so noone sees it. It pushes up on his ear and his nerves and we have been trying all kinds of ways to keep him out of pain to enjoy life and school.


he strongest kid I know ..he don't let it stop him from living ..pain and all


I haven't been able to work

and now my cards are maxed and sent to debt collectors and that alone ruined me mentally after all hard work I did..I try do some refurbishing and wood work to buy food and help with bills and gas...

but there's weeks i go without and have to use bill $ for food.

Took a year before he qualified for ssi medical help but we don't qualify for food help or nothing ... They say if i work, i could loose his medical and cant do that as just one visit is over 20 grand...

it's hard but we have a great community that helps when can.


Not working for over 2 years plays huge toll on you. But I'll do anything for my son. I just wish I could do more for him. I try taking him to all the movies he wants to watch. Drs don't give us any hope now that it's taking over his head. They won't do another surgery due to there to many and near brain tissue. He is all about our church, he does the sound bar there. He is 10th grade, all honors and 2 college classes. He top 10 of his class... he literally only cared about school and I pray more than anything he gets to live to graduate with his class... he deserves more then this horror.


Thank you for the love and support

most of all I ask for healing prayers


I just made shirt with healing prayer for him says:


"THAT ONE HEALING PRAYER FOR AARON"


Today I pray for a sick loved one. Aaron James Espinoza..I ask that you take control of his body.Be his dr this minute. Burn all unwanted diseases from his body. I bind all cancers and other sicknesses from his body. We come against any spiritual disease fighting against him. We ask that you quicken his body to full fitness with holy spirit. Restore his strength and health. Let him recover in spirit and physically.


Thank you for hearing our prayer, Amen

Organizer

stacey johnson
Organizer
Alice, TX
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