Jensens Duchenne Journey

My name is Adella and I am here to ask for help to give my son the best life I possibly can.

The news no parents want to hear, my heart breaks even writing this but here goes..

My son Jensen who is now 4 years old was diagnosed in May 2024 with a disorder called Duchenne Muscular Dystrophy. He is also awaiting team review for Autism as he up until now is none verbal.

Duchenne muscular dystrophy also known as (DMD) is a fatal genetics disease that causes all muscles to gradually weaken and waste away. Abnormal genes interfere with the production of proteins needed to form healthy muscle. There is no cure for this disease. Meaning he will loose all mobility and become wheelchair bound. The life expectancy is massively impacted and will eventually take our boy in his 20’s. This disease only mainly affects boys and unfortunately our bundle of joy is now one of them.

Jensen is a young boy who absolutely loves life, he always has the biggest smile on his face that lights up the whole room! He loves being able to run around and explore anything and everything. He is never able to sit still and has so much energy and so many interests. He is very clever and self teaches himself, from the alphabet to counting. He absolutely loves animals and knows pretty much every single one as he occasionally wants to watch David Attenborough.

I have created this page to raise funds to be able to give him as much as I possibly can before everything he’s ever known will be taken from him. He can still walk and I want to do as much as possible while he still has his mobility. We will never be able to teach him little things like riding a bike or to play football, he will loose the one thing he enjoys doing. Being autistic means he will not be able to understand why this is happening, we can’t explain what he has or even prepare him for what the future holds.

We have researched current trials for a cure to help boys affected with this horrible disease. Money raised will go towards not only fun days out for Jensen but towards travel expenses to facilities where trials are ran to find a cure. We will exhaust every single option if it means there would be even the slightest chance of being able to fight it!

No parent should have to plan loosing their child before their life’s even began. Having to watch our miracle baby slowly become weaker and weaker slowly loosing his life. No parents should be told their child will go before they do.