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Jeffrey’s journey

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On Sunday 10th October Charlotte and I will be completing the Manchester Half Marathon!
In hope to raise funds for Jeffrey who is 5 years of age and was recently diagnosed with CLN2, an extremely rare Disease.
As you would expect this has devastated his family, as the future is very much unknown, and it’s an incurable disease.

This disease has a life expectancy and to try and suppress the rapid disease, Jeffery has to attend appointments every two weeks! in London with his family, to have an infusion into his brain.

Family, friends and the local community have rallied around to try and help to make as many memories, support them and enjoy their time that they can with Jeffery.

So that being said me and Charlotte would love to help them as much as we possibly can and would be so grateful if you could please donate what ever you can to help.
Thank you so much xxx
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    Organizer

    Emma Bonsall
    Organizer
    England

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