My name is Sarah.

Last year a young father called Jack contacted me to share the story of his son Jaxon. From the very beginning it was clear this was a family facing unimaginable challenges.

When Jaxon was just three months old Jack knew something was wrong. Jaxon was admitted to hospital and later diagnosed with an incredibly rare genetic condition called L serine deficiency disorder. His specific strain is the first of its kind ever recorded in medical history.

Doctors have told Jack that Jaxon is already completely blind and will not walk or talk on top of all that his condition is life limiting. Jaxon suffers painful muscle spasms and cannot safely coordinate breathing and swallowing so all of his food and liquids are given through a tube directly into his stomach.

Despite everything Jaxon still smiles. He responds to his dad’s voice and touch. He feels love and he knows he is loved.

The local council did not consider Jack and Jaxon a priority for housing. As a result Jack had no choice but to live in hospital with his son for over a year. That stay cost around one thousand pounds per night, approximately three hundred and sixty five thousand pounds, when Jaxon could have been cared for at home with the right support.

Jack has now finally been given a council house but it is completely empty. He has been unable to work while caring for Jaxon full time and they have nothing to furnish their home.

This fundraiser is to help turn that empty house into a safe, warm and comfortable home for Jaxon. Beds, furniture, essentials and stability after a year in hospital.

Any donation no matter how small will make a real difference. If you cannot donate please consider sharing.

Thank you for helping Jack and Jaxon.