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Quick version:
27 years old from Burton, NB.
Born with Cystic Fibrosis.
Had my first double lung transplant in June 2016. Diagnosed with rapid rejection in Oct. 2019.
Also diagnosed with chronic kidney disease, osteoporosis, and brain damage from several TIA's I had following my first transplant.
Now on Palliative care.
Lung function now under 30% and on 5L oxygen at rest (7-10L when standing).
NEED SECOND TRANSPLANT ASAP which means relocating back to Toronto.
COVID is making the wait times longer so the sooner I get listed, the less chance of me dying while we wait for lungs.
I'm down to 90lbs and can barely get out of bed.
PLEASE HELP.
(Extended version):
Hi! I'm Jade. I just celebrated my 27th birthday on November 15th. We (my other half, Ben, and I) live in Burton, New Brunswick. I have battled cystic fibrosis my whole life (it's genetic) and on June 22nd, 2016, I received a second chance to live thanks to my organ donor. I got a "new to me" set of lungs that did EXTREMELY well for 3.5 years.
One particular day in Sept 2019, I noticed I was becoming short of breath when talking. This was the only symptom I was having, so I figured it could be the start of a cold. I ended up in the ER not long after. I spent from October 3rd until October 26th in the DECH, where I then was sent back to my team in Toronto and was in-patient from Oct. 27th - Nov. 15th. During that time I was diagnosed with Restrictive Chronic Lung Allograft Dysfunction. Basically a rapid form of rejection. This means I will need a second transplant. My lung function went from around 90%, down to 50% in about a months' time-span. Over Ithe last year, my lung function has dropped to below 30%, I'm on 5L of oxygen at rest, and am only 90lbs because I can barely get out of bed so I've lost a lot of muscle mass. When your lungs don't work, the rest of the body stops working too.
This GFM is to help raise funds that will be our source of paying for expenses as we move back to Toronto January 1st for me to be placed on the organ transplant waiting list and wait to receive my next set of lungs. Ben will be taking leave from work to help take care of me, just as he did last time. The apartment we are renting is $2400/month, plus last months rent of $2400 due ASAP. NB medicare will reimburse us for rent since it's under $2500, however I have to be on the waiting list to be eligible for reimbursement, and I can't be listed until we are living in the apartment there. We have to pay for everything up front and it takes 6-8 weeks each time to get the reimbursement. We also need to be able to pay for electricity, Insurances (car, health and tenant), Medication co-pays (approx. $50-$100/month), Over-the-counter vitamins and supplements (approx. $100/month), Groceries (including a special high fat, high protein diet), Car payment, Cell Phones for Ben and I which are mandatory, Parking, or taxi to hospitals when necessary. This doesn't include any emergency/incidentals. We could be dealing with these monthly expenses for over a year. We were in Toronto for 14 months for my first transplant. And with COVID, it is going to make things much more complicated.
We are hoping our great city, province, country....etc. can pull together for us once again during this scary, stressful, emotional time.
Thanks for reading. I know it's a lot. Please stay tuned for updates!

