My name is Luke McMahon and I am 15 years old. Since preschool Blair Chapin has been my friend.
Blair is an amazing person. Anyone who knows her, knows she has an infectious smile that lights up our world. Blair is also a fighter. She is battling a rare disease called Sanfilippo Syndrome. It is a degenerative cell disease with no cure today.
Blair turns 15 on December 21, 2016. We want to make it a big celebration.
Music is one of the things that brings Blair so much joy. She loves it, she always has.
I wrote this song called "I Won't Let Go"
for Blair, to let her know I will always be here fighting by her side.
Right now there is no cure for Sanfilippo Syndrome, but there is promising research and a cure is within reach!
If you feel led, please lend your support to CURE SANFILIPPO FOUNDATION
and share this video.
Together, I hope we can make a difference for Blair.
Help spread the word!
For more information on the 501c3 nonprofit, Cure Sanfilippo Foundation, and Blair's story, please visit www.CureSFF.org/Blair
Preschool photo of Me and Blair
Blair's Beautiful Smile!
My Letter to Blair's Parents