Our beloved son Itay is 2 years old. He was diagnosed with CHARGE syndrome at birth and has a hearing loss in both ears, feeding issues, vocal fold paralysis, gross and fine motor deficits, and developmental disorder of speech and language. CHARGE syndrome is an extremely complex genetic disorder with life-threatening birth defects. He is primarily non-verbal and has a tracheostomy as well as hearing devices. Itay has had numerous surgeries and medical treatments in his young life and receives speech, occupational, and physical therapy weekly. Despite these challenges, Itay has exceeded all of our expectations! He is truly our miracle baby! With extensive therapies he is making great progress and beginning to make sounds, play with toys, and crawl. Itay is the heart of our family and we spend every single day focused on helping him reach his highest potential. We are often exhausted and frustrated by all the obstacles we face as a family, but Itay’s lights and progress keeps us going. We would do anything and everything to make sure our son has all of the support that he desperately needs. We are starting this GoFund Me to help Itay continue to get all of the services he needs such as vision therapy and hippo-therapy as well as therapeutic equipment that will help him. Fighting with insurance companies and managing all of his medical appointments is overwhelming. Sometimes we aren’t sure if we can keep up the fight. Then we look at our miracle baby and we know that we will never stop! Please consider helping Itay with a donation.