Hi, my name is Jono Tiernan. I am competing at the Sydney 70.3 Ironman race in September. As part of my journey I am raising awareness and funds to find a cure so that my friend's daughter Holly and the rest of the children with Rett Syndrome can have better lives in the future.

Observing how selflessly my friend devotes himself to this cause has inspired me to get involved. He’s an amazing father and leader and his example is something I personally aspire to. Thank you Brett.

Your gifts will be used to directly support research into Rett Syndrome, carried out by the University of Sydney in conjunction with Children’s Medical Research Institute.

Your generosity will help boost this vital research, bringing us closer to a successful therapy within Holly’s lifetime.

I am kick starting donations with $300.

Please help us support this amazing cause to improve survival and long-term health outcomes for children with Rett Syndrome.

If you would like to find out more about Rett Syndrome and the research please visit the website. www.rettresearch.org.au