At 20 weeks our sweet baby was diagnosed with Osteogenesis Imperfecta type 2, the most severe type. We were given the option to terminate our pregnancy at this time. We choose to continue our pregnancy, to keep our sweet baby boy with us as long as possible. We were told there would be a 1% chance of survival at birth and we were told how he would suffer regularly from broken and fractured bones for his entire life if he did survive. We were willing and prepared to do everything we could for our son. We hoped and prayed that he would survive, or that we would at least have a few short moments or hours with him following his birth.
On April 22nd 2018, two months before our due date my water broke. After receiving my epidural Quinn’s heart rate dropped and we were rushed to an emergency c-section. Due to the extreme amount of amniotic fluid lost we experienced a placental abruption and his cord became completely detached. When they got him out he wasn’t breathing. He was rushed to the NICU. I was told they were doing everything they could for him, but that it wasn’t looking good. They tried to get him breathing again with an infant resuscitation mask but were unsuccessful. Our sweet baby boy was gone. During this time I had been taken for two blood transfusions due to extreme blood loss. A few hours later I woke up having to face the sad reality, Quinn hadn’t made it.
When a family looses a child to a miscarriage, stillbirth or other unfortunate circumstance, the time they are able to spend with them is short...my time had just been shortened even more.
Our family and our close friends comforted each other the best we could and we all took turns holding Quinn and spending as much time with him as we were able to. I tried to memorize every little inch of his body. I knew I only had a short time with him, and I wanted to make sure I would be able to remember everything I could about him for the rest of my life...his chubby cheeks, his dark hair, his cute little feet. I spent the next 5 days in the hospital. Without my precious baby boy. Words can’t even begin to describe the pain and heartache. I didn't know at the time that there was a device that would have allowed me to have more time to spend with Quinn. It wasn't until I had reached out to some infant loss support groups, that I learned of the cuddle cot.
During our pregnancy with Quinn, his story reached and touched more people than we ever could have imagined. As we near Quinn’s first birthday in heaven, we want to honor our sweet little angel and Osteogenesis Imperfecta. We want Quinn to continue to touch people. Our family would like to provide items of comfort to other families who unfortunately find themselves experiencing this horrible loss.
Jon and I have met and spoken several times with a wonderful individual at Utah Valley Hospital who has helped us with coordinating some items that we would like to raise money to purchase and donate to the hospital. Specifically the two items we have in mind are a cuddle cot, which is a cooling device that allows bereaved parents and families to have more time to spend with their baby. As well as a camera equipment package for the Bereavement Services to use to capture photographs of infants in the short precious time a family has with their baby. Currently, they are making do with a personally owned, outdated camera. This new package would include a state-of-the-art camera, wide-angle lens, lighting equipment (softer, more professional results), and a printer, along with a large supply of SD cards. This camera package would be used in serving 3 of the Utah county hospitals.
The cost of the cuddle cot is $2,765 and the price of the camera package is $1500. If you would like to donate any amount towards this, not only would we appreciate it more than we can express, but the families these items will help during the most heartbreaking time of their lives will also appreciate it. We would also be extremely appreciative if you would also share this with those you know.
If our total amount is not reached, or if we are blessed enough that it is exceeded, any of those funds will be donated to help with additional items and programs associated with the bereavement program at Utah Valley Hospital.
You can read more of our story at:https://beyondbrokenbutbeautifullyblessedhome.wordpress.com