Imogens bone marrow transplant
Donation protected
Imogen , was born at 34 weeks with a very rare genetic disease called Fanconi Anemia. This is a horrible disease,
and as of now Imogen is in bone marrow failure.
Imi has had several surgeries and procedures since birth and blood tests
Including hip surgery x3 , vp shunt, her thumbs (one removed and index finger moved over and her other made it so she can use it , gromits x3 procedures , and bone marrow aspirations x4 and Several hospital admitions for infections as she is imuno deficiant
Imogen also has hearing loss and global developmental delay and is sensory
Fanconi Anemia
FA is a rare inherited blood disorder that affects 1 in 350,000. It leads to bone marrow failure. FA prevents your bone marrow from making enough new blood cells for your body to work normally. FA can also cause your bone marrow to make faulty blood cells.This can lead to serious health problems, such as leukemia (a blood cancer). People with FA are also prone to cancer their entire life as its treatable but not curable .
We begin transplant process start of Jan 2021 . Loads of appointments start as outpatient at Perth Childrens Hospital ,then she will be admited to have a port early this year plus bloods transfusions preperation is also tricky
in march or april we will be admitted to perth childrens hospital.
The treatment for this is brutal and complicated as its treated under a different protacol as fa children are very sensative
We will start her chemo and stem cell transfer she will get his second chance at life,
all our thanks to a donor and pch
The money raised from this will go towards ongoing costs and expenses to help give imi the best care and treatment during her battle
We will be having to relocate from Bunbury to Perth for at least 6 months or more meaning Rachael canot work in the salon and Russ has been seriously ill an unable to work for nearly 12 months
we will have alot of out of pocket expenses and are doing our best to stay afloat whilst being bedside in an isolation room with imi
With your suport and help it would relieve some of the burden we are facing and allow us to spend quality time and focus wholey on our precious daughter imi
its a very difficult time thank you for everyones support, prayers and advice ❤
Any donation big all small is highly apreciated even if you can share would mean alot
Follow her journey at
Sending in advance much love from our family to yours
Thankyou
Rach, Russ and Imi ❤
Co-organizers (2)
Rachael Smith
Organizer
Russell Smith
Co-organizer