My name is JC (Jean-Christophe), I am 47, married with 2 young children.
I was diagnosed with MS (RR) in 1995, and moved to the SPMS form in 2015. I am wheelchair bound since then.
I want to stop my MS before the disability becomes to big.
At the moment there is no treatment or drug for SPMS.
However a treatment, HSCT (Hematopoietic Stem Cell Therapy), can do it.
Right now, this is the only treatment which can halt the progression completely. The therapy has had some amazing results and has been shown to halt the progression of the condition in 80% of cases.
Autoimmune damage of myelin is associated to MS.
HSCT works in 3 steps:
1-Generating, collecting and storing hematopoietic stem cells
2-Administering chemotherapy to further eliminate immune cells responsible for the underlying autoimmune disease
3-Infusing back into the bloodstream the stored hematopoietic stem cells in order to repopulate the immune system with new
Concretely it's a reboot of the immune system, thereby halting the underlying disease activity.
To know more about HSCT, click here
Unfortunately, I do not meet the strict criteria to get the treatment on the NHS which is very limited at present.
As I urgently need this therapy to halt my MS before it does more damage (such as brain shrinking or seizures), and its simply too late, the solution is to go private.
Following an assessment, I have been accepted as suitable for treatment at one of the centres offering HSCT treatment outside the UK.
I have been offered a date for the treatment in May 2020 which offers an opportunity for hope for the future for the first time.
I will need to pay upfront 2 months before the treatment set date.
Having this treatment would help me to continue to live my life normally by carrying on working, allowing me to raise and support my two young children (5 and 7).
As well it will help me to take a bigger share in the family life, relieving my wife who is a strong support.
In summary, with this treatment I will be able to take back control of my life that has been removed from me by the MS over the last 24 years.