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When our daughter Tegan was diagnosed with Rett Syndrome at 18 months, our world changed. Now almost five, Tegan faces the daily progression of this devastating disorder, but we refuse to lose hope. Science has already shown Rett is a reversible genetic disease, and that knowledge fuels our family’s determination to see a cure become real in Tegan’s lifetime.
We support the Rett Syndrome Research Trust because they focus on curing Rett by targeting the root cause. RSRT is the largest global funder of Rett research, and their work has launched the gene therapy programs now in clinical trials. They are lean and accountable, directing 97% of funds straight to research, which matters deeply to us as we invest in our child’s future.
Right now, a generous Rett family will match every donation up to $100,000 through July 1st. That means every gift goes twice as far to accelerate the science that could restore abilities and change lives for Tegan and the 350,000 others affected by Rett. Your support helps advance genetic medicines and bring scientists and companies together to make a cure possible.
Please join us in funding hope for Tegan and so many families like ours. Donate to the Rett Syndrome Research Trust today and be part of the effort to cure Rett once and for all.
Organizer
Rett Syndrome Research Trust
Beneficiary

