Hope for Jaxon

The Jersey Shore NFL Flag community would like us to pull together as one again, to help support the family of one of our Rookie Division athletes, Jaxon Fuge.  Jaxon is an energetic, caring, smart 6 year old kindergartener.  He was diagnosed with a rare genetic disorder called Neurofibromatosis type 1 in February 2020.  This neurologic disorder affects 1 in 3,000 people.  The disorder is characterized by multiple cafe au lait (light brown) skin spots and neurofibromas (small benign growths) on or under the skin, and/or freckling in the armpits or groin.  Since his diagnosis, Jaxon has been in and out of different hospitals and doctors.  After switching him to the Neurofibromatosis clinic at CHOP, it was determined he was not having seizures, but that he has a tumor on his right optic nerve and the vessels around his eyes are severely twisted.   The most concerning diagnosis was Chiari  I malformation with a 6.5 mm of cerebellar tonsillar ectopia.  Basically part of his brain is "sagging" through his skull.

Unfortunately, there will be a lapse in insurance for the family.  Through this effort, we are looking to support Jaxon and his family with funds to assist with  travel, food, lodging, and doctor's appointments.   We know that our #jsnflflag community always pulls together to help support one another, so let's do it now for Jaxon!