My boyfriend’s mum, Maureen, unfortunately passed away in late February 2026. Before knowing Maureen, I had never even heard of Huntingtons.

As I started to spend more time living with Maureen she became a massive part of my life and daily routine. Although I only got to know her while she had this disease, she taught me so much. Every day I looked forward to coming downstairs and seeing her face light up when you walk in or hearing her cheekily ask for a chocolate just before dinner.

Maureen was caring, endlessly positive and incredibly funny. She had a way of bringing light into the room, even on the hardest days. That light is deeply missed.

Since her passing I have struggled more than expected, not just without her presence, but with the feeling of helplessness that comes with it.I wanted to find a way to do something meaningful in her memory. So what better way to raise awareness, than jump out of a plane!? I can only imagine the look she would give me if she knew I was doing this.

All donations go to a charity supporting people with Huntington’s. If you are able to donate it would mean so much and even if you are unable to donate I ask that you simply research and educate yourself on Huntingtons and share with family and friends.

Thankyou for reading and helping me honour Maureen’s memory

More information about Huntington's Disease Association: The Huntington's Disease Association is a national charity supporting people affected by Huntington's disease (HD) across England and Wales. HD is hereditary; affects the central nervous system and is currently incurable. Caused by a faulty gene passed through families; each child of a parent with HD has a 50% chance of inheriting it. Through our national support network, publications, local branches, professional training and social research funding we help people affected by HD live a better life.