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My Journey with my son Ishaan.
Hello, my name is Baldish i am a single parent, and I am the proud parent of an incredible, bright-eyed 13 year old boy named Ishaan (Shani). From the moment Ishaan came into my life, he has filled my world with a unique and beautiful light. Our family’s story includes a chapter we didn't expect, but have learned to navigate with love, strength, and resilience. Ishaan was diagnosed with xyy syndrome and put on the autism spectrum disorder (ASD) at the age of 7 years old.
XYY is a genetic condition, simply meaning he has an extra Y chromosome. It’s not a disease, it’s a part of his unique wiring that makes him who he is, often wonderfully energetic, very tall for his age, and possessing a heart of pure gold, and while this diagnosis explained the challenges we both were seeing, it began a new chapter in our lives, which i dedicated to finding him the best support possible.
Ishaan is an amazing child. He loves lining up his toy cars, watching the spinning wash machine, and playing on his iPad as he enjoys watching videos on you tube, playing Roblox, pixel gun and also giving me the most wonderful hugs and kisses. His laughter is contagious, and he sees the world in a way that constantly teaches us about joy, patience, and perspective.
While his autism and xyy is a part of who he is, it also comes with significant challenges that affect his daily life. He struggles with verbal communication and says single words to three word sentences only. Listening skills he also finding challenging, He experiences overwhelming sensory input that can lead to immense anxiety. We are working on crucial life skills like safety awareness and self-care. Things that seem simple to us, like getting dressed, cleaning our teeth, putting on our shoes, crossing the road, or even knowing when something is dangerous, are incredibly complex for him. His brain doesn't automatically send him those safety signals. So, my most important job is to be his external safety brain. I'm there to help guide him through tasks and keep him secure, because his well-being is everything to me.
I have tirelessly researched and found proven therapies that can make a world of difference for him, such as:
Speech-Language Pathology, Occupational Therapy (OT) which are helping him a little, but not making a big difference. Ishaan attends a silc school and has a educational health care plan in place, which im so grateful for.
Our Daily Reality, The Challenges We Face Together
Being 13 years old is hard for any kid. For my son, the typical challenges of adolescence are amplified. My days are spent as his guide, his advocate, and his safe harbor.
The World Can Be Overwhelming, Imagine trying to concentrate when the lights are too bright, the sounds are too sharp, and your own body is buzzing with energy. This is often his reality. A simple school day requires immense effort for him to focus and feel settled.
The Social World is a Puzzle, Reading social cues and navigating friendships doesn’t come instinctively. I see his longing for connection sometimes met with confusion or misunderstanding, which is a heartache every parent knows too well.
I Am His Constant Advocate. My life involves countless meetings with teachers and doctors to ensure he has the support he needs in school, therapies to help him build crucial skills, and constant vigilance to protect his self-esteem from the bumps and bruises of feeling different.
There are days of exhaustion and frustration for both of us. But in our home, we don't see a condition, we see a courageous boy doing his best.
We Find Calm in Routine. We structure our days with predictability. Knowing what to expect gives him a sense of control and safety in a world that can feel chaotic.
We Channel Energy into Passion. That incredible energy is a superpower waiting for the right outlet. We found this in swimming, trampolining and dancing and laughing and being happy. Here he isn't a kid with XYY, or autism, he's an athlete, confident and capable.
We Communicate with Radical Honesty. We talk openly about emotions. A meltdown isn't a tantrum; it's a communication. We've learned to reset together, to name the feeling, and to find a path forward, side-by-side.
I Am my Ishaan's Mirror. My most important job is to reflect back to him the incredible person I see. I remind him that his height makes him a natural leader. His intensity is passion. His different way of thinking is creativity. I am his loudest cheerleader, and my pride in the young man he is becoming knows no bounds.
I share this not for sympathy, but for understanding. I share it because I am proud of our journey and want to demystify what it means for my Ishaan to live with XYY and autism. By understanding his daily reality, you can better appreciate his triumphs and the strength of our family.
A Beacon of Hope: Stem Cell Therapy
In my relentless search for ways to help my son, I have been profoundly encouraged by the emerging research and countless positive testimonies from families regarding stem cell therapy, all around the world.
This innovative treatment has shown remarkable potential in helping to repair and regulate the nervous system. For children like Ishaan, this could mean:
Improved ability to communicate and connect
Reduced sensory overload and anxiety
Better focus and cognitive function
An overall increase in his quality of life and safety
This isn't a cure, but it is a powerful intervention that could open doors for him that we never thought possible. It represents our greatest hope.
Our Humble Request for Your Support
Despite its promise, this treatment is not covered by insurance and comes with a significant financial cost. The total amount for the procedure, travel, and medical expenses for just one treatment minimum is around £16500 per treatment depending on the country and hospital we get the stem cell therapy treatment from, and for a good result outcome they say 2 to 3 treatments are needed for him. so around £50.000 minimum is needed for his treatments.
This is a sum I cannot manage on my own as I'm a single parent and ishaan carer.
This is why I am humbly turning to you, our community of friends, family, businesses and compassionate strangers. I am asking for your help to give my son Ishaan this chance please. i will be forever grateful and Ishaan to. may god bless you all.
How You Can Help
Any contribution, no matter how small, brings us one step closer to our goal. Please consider making a donation and sharing a piece of our hope.
Share This Campaign. If you are unable to donate, you can still make a huge impact by sharing this page on your social media and through your networks. You never know who might see it and be able to help.
Send Us Your Prayers and Good Thoughts. I believe in the power of positive energy and are grateful for every single message of support.
I believe in a future where Ishaan can experience the world with less fear, be more confident and courageous in himself, there could be
Improvements in
Core Communication and Social Skills for example Increased Verbalization, Better Language Comprehension, Improved understanding of what is being said to him, leading to better follow-through on instructions. it can Enhance Social Engagement, More eye contact, increased interest in peers, a greater desire to interact with family members, and improved ability to initiate and maintain social interaction.
Reduction in Repetitive Behaviour's and Improved Flexibility, Decreased Stereotypical Behaviour's, a reduction in hand-flapping, rocking, or other self-stimulatory behaviour's.
Increased Adaptability: Better ability to handle changes in routine or transitions between activities with less anxiety and meltdowns.
Cognitive and Awareness Improvements:
Increased Focus and Attention: Improved ability to concentrate on tasks, schoolwork, or during therapies.
Enhanced Cognitive Function: Parents sometimes report their child seems "more present," "more aware of their surroundings," or has quicker cognitive processing.
Sensory Processing Improvements: Reduced Sensory Sensitivities: Better tolerance for loud noises, bright lights, certain textures of food or clothing. This can drastically improve quality of life and reduce meltdowns triggered by sensory overload.
Improved Motor Skills: Some report better coordination, balance, and motor planning.
if the treatment gives my Ishaan any of the above improvement's as it says stem cell can achieve, its life changing improvements, his life will be so much better for him and easier as at the moment he's dependant on me for everything, this will make him independent and give him a chance to live a good life full of hope.
we can make that future a reality.
We are navigating this path with love as our compass, and we are so grateful for any support—whether it's a kind word, a shared post, or a helping hand—that helps us ensure Ishaan has every opportunity to shine as brightly as he deserves.
From the bottom of my heart, thank you for your love, your support, and for considering being a part of our journey.
With immense gratitude and hope,
Baldish Kaur
A proud and hopeful Mother
Our Promise of Transparency
We commit to being completely transparent. All funds raised will be used solely for Ishaan's stem cell therapy treatments and connected therapeutic expenses. We will post periodic updates on his progress so you can see the real, tangible impact your generosity is making.
Thank you for taking the time to read our story, for your love for Ishaan, and for considering supporting our family. We are forever grateful for any help you can provide. May God Bless You All
With hope and heartfelt thanks,
Baldish Kaur - Ishaan Singh & Our Family
Organizer
Baldish Kaur
Organizer

