Help with Josiah’s long road ahead

Hi everybody, my name is Stephanie. I normally would never get on here asking for help . I am a single mother , I work my butt off to take care of my 3 kids by any means no matter what but right now I am faced with the hardest thing I’ve ever had to go through.

My son Josiah, my youngest started getting really sick around March/February. It started with what we thought was just a normal ear infection. It quickly turned abnormal, even scary. I tried to be patient and let it run its course because after all the doctors said it was just something viral. I started to feel helpless because he wouldn’t eat, play, talk, smile nothing. He definitely was not getting better at all. Only worse as days went on, just sleeping all day and night . He than became lethargic. I finally had enough and took him to the York hospital march 1st 2025 where he was then admitted with mastoiditis and a left subperiosteal abscess. They did surgery to drain the abscess to help him keep his hearing as that was something that could have permanently been lost. We were discharged the 4th thinking things would finally get better. But Sadly after his out patient follow up with the ent specialists on march 6th we were sent to York hospital again then urgently sent straight to Penn state children’s hospital in Hershey from there. Admitted once again and there he spent days in the icu for intracranial blood clots because of his diagnosis. After that it just billowed out of my control. Multiple discharges and re admissions to the hospital since than. A temporary picc line that hangs above his heart that he still has till this day, tubes in his ears to help drain the infection and more. It feels like there is no end in sight for us being in the hospital, given the fact that we are currently in the hospital again as of April 2nd because he has pressure forming on his brain from the blood clots and now his eye sight is at risk. Just minutes ago sitting here writing this I just got the results that his kidney levels aren’t where they should be and are concerning.

It’s just so much going on since the beginning of his original diagnosis that I can’t wrap my head around it. Seeing my child go through this is breaking my heart. He is being so strong but he doesn’t understand what is happening to him. My baby is only 5 just a kindergartener . He cannot play like a normal child ,cannot go to school anymore. He has a long road ahead of him still. I can’t wait to see my boy be his normal happy silly self that we all know he is again.

My issue is I cannot work as I have to stay by his side through this all. I’ve tried going back but I go right back to calling off and missing days at a time. I am a mother first and his health is my #1 priority right now and I am not complaining by no way, trust me. I’m putting my pride to the side and not only asking for help financially but also spiritually. I am falling behind on my bills, rent and so much more . This is so hard being that I have 2 other kids as well. I’m not asking for much just whatever you can or even if you can share our story and say a prayer.

Thank you so much for your continued support and prayers i sincerely mean it with all my heart ♥️