Help Us To Help Jack
Donation protected
Our little grandson Jack has been diagnosed with a very rare condition called Pelizaeus-Merzbacher Disease (PMD for short), which is a genetical disorder.
This disease has been passed down through the females in our family and it predominantly affects little boys but can affect little girls mildly.
There is no cure for this disease - this is not to say in the future there may well be. We are positive and are waiting for Jack to start trials with Professor Rowitch next year (2019). This will more than likely involve having to go to America for this treatment.
This is where we need your help.
We have now decided that we need to start fundraising to send Jack to America for stem cell treatment, modify his home, so it will be easily accessible for him, and to purchase any equipment he may need, and to fund opportunities and experiences which will allow Jack to enjoy his life to the full.
We will try to raise as much as we can so we have the funds ready to send Jack to America. We will be doing lots of sponsored runs, and events.
We appreciate all the help and support that we receive.
This disease has been passed down through the females in our family and it predominantly affects little boys but can affect little girls mildly.
There is no cure for this disease - this is not to say in the future there may well be. We are positive and are waiting for Jack to start trials with Professor Rowitch next year (2019). This will more than likely involve having to go to America for this treatment.
This is where we need your help.
We have now decided that we need to start fundraising to send Jack to America for stem cell treatment, modify his home, so it will be easily accessible for him, and to purchase any equipment he may need, and to fund opportunities and experiences which will allow Jack to enjoy his life to the full.
We will try to raise as much as we can so we have the funds ready to send Jack to America. We will be doing lots of sponsored runs, and events.
We appreciate all the help and support that we receive.
Organizer and beneficiary
Sally Hope
Organizer
Sian Wright
Beneficiary