Hi,

I'm Tweet! I have a bone disease called hypophosphatemic rickets. It makes life extremely challenging for me. I have lived my entire existence with a smile on my face and positivity that could lift the world!

However, as I get older, I realized that positivity and smiles can only go a short distance. I have missed out on so much progression simply because I am "disabled." Despite that, I’m the proud mom of 3 beautiful kiddos (May, Eda , and Ro) and proud wife to Erik Johnson.

May is our energetic 5 year old. She is as quick as a whip and has this uncanny desire to learn about EVERYTHING! She is so courageous and kind. She loves so hard and makes friends with just about anyone she meets. She has struggled the most from our family changes. We have been moving since she was born. We've unfortunately have had things happen (difficult management and housing catastrophes) that have caused us to move almost every year of her little life.

Eda is our little 3 year old shine sprite. Her giggle would power the world. She loves doing anything her big sister does and loves and adores her little brother. She enjoys cuddles, hugs and kisses. She loves with all of her heart and just deserves all the happiness this world could offer. She'd give you her last cookie if she knew you had nothing. Eda has to get bi-weekly injections for the bone disease that she inherited from me. Although it is hard for her, she toughs it out and carries her strength through her playful spirit.

Our little Ro is all baby brother! At almost 2, he loves making messes and taunting his sisters. He is learning about the world and has the curiosity and bravery to discover. He is just as sweet and loving as his big sisters. He takes on this world even though he was also diagnosed with the rickets as well. We hope to start the treatments with him too.

I feel I have not been able to give my all to my children. I want so desperately to give them a home where their needs will be met and we do not have to be pressured by management to be "the same" as every other tenant. It is such a challenge living in rentals. Our current rental is not at all ADA (Americans with Disabilities Act) compliant. I have pleaded for accommodations, gotten doctor's notes, and even verbally explained that certain standards my family cannot always live up to because of our disabilities. Simple things like putting away dishes, sweeping, or even getting out of bed are just so difficult with this bone disease. There is constant pain and struggle but managements and those in charge consistently throw ableist ideals our way. It is disheartening and discouraging. I just want so badly for my family to be able to live a normal life without overhead stress and lack of understanding or empathy.

I would do just about anything for my sweet kids which is why I’ve started this go fund me. We need to achieve better housing. I want May to be able to run and jump and be the free spirit she is. I want Eda and Ro to be able to get better treatments and therapies for the bone disease they unfortunately inherited from me. I want to be in a home that I can maneuver safely and without struggle to do simple tasks and take better care of my family. I no longer want the dread of having to go up and down the stairs with elevated pains or the fear of having inspections on days I have pain flare ups. We want so desperately to get our family into a home where we are not being harassed by overhead management who could care less about our family, our limitations, or our well-being.

We are asking for help. We want to give our family the peace of mind that comes from having a home that is outfitted for our disabled members. I am just not in the position to do so alone. I’m limited with the work that I’m physically able to do while my husband battles different ailments stemming from a childhood brain injury and an unknown autoimmune disorder.

At this point, we have been presented with the opportunity to get our family into better housing. This housing is better suited for our family, especially those with physical limitations. We are pursuing a home that is one level (no stairs) and designed in such a way that we can better build our dreams and create steadier and more reliable incomes. We’re trying to lift our family, but we are at a stand still with funding.

If you have it in your hear, then please give, donate and/or share our story. I’ve seen miracles happen...we are hoping for just one more.

Thank you for reading our story.