Please help the Fourie family jn a time of crisis

Hi my name is Ceryle, I'm 46 and a Wife ans a mama to 4 children . I have put my pride in my pocket in the hope of some help for our family

Hi all, so I wanted to share what happened in the last 8 weeks of our lives

About 8 weeks ago i had an episode where i felt the left side of my face and left arm go all numb and tingly....felt so out of sorts my hubby called the ambulance. Once I arrived I was seen pretty quickly( within 10 mins) . Bloods were done because they thought I'd had a mini stroke. Bloods came back that I hadn't so they were going to let me go home....but one consultant decided to carry out a brain scan ....to their shock they found a large brain cyst on the right side of my brain and said I wasn't going anywhere....from there they were consulting straight away with The Beaumont hospital in Dublin as they deal with brain surgery. I spent 2 weeks in hospital with more Mri's , physio and seeing the neurologist. Beaumont couldn't decide if they wanted to do surgery as they may do more damage. I was then allowed to return home .

One week later I started having what I called jerks and after the 3rd one which lasted more than 20 mins( hubby on the call the whole time to the ambulance lady who wouldn't stop the call until the ambulance arrived ) . Once the crew arrived the one paramedic kept telling hubby and kids I was having a panic attack.....I remember him asking me questions and my brain registered what he was asking but I couldn't physically speak the words ...he kept telling me not to try spell it but to speak it.....tears rolling down my eyes as I jist couldn't get the words out. Once I arrived at the hospital one of the drs I'd seen the first time saw me and came to ask my hubby what had happened .....finally I found out that I had aphasia due to length of the seizure/ convulsions ...not a panic attack . I then spent another week in hospital on anti seizure meds to try and prevent them. I had to come of them for 24hrs as I had to then be ambulanced to Sligo for an eeg of my brain...needless to say I had many a seizure inbetween then. Then blue lighted as I kept having the seizures.

During this whole period my kids had to watch the seizures which no child should watch ...not hear a paramedic tell them it's a panic attack ...force me to try speak, see me in a state no child should . Try and keep a normalise life to some degree

Hubby having to cut down to part time hours because we've no family to help with the 4 kids and trying to keep the routine for the kids which was been a massive strain on him ryint to juggle work and kids and stressing over me ....my kids not wanting to leave my side for fear I may land back in hospital, which unfortunately did happen a 2nd time

I've been told that my blood clot levels are slightly high and I may have a small blood clot but they are only repeating the Bloods in a months time. Dublin still can't decide about surgery...

Mine and that of my families lives have changed in the blink of an eye.....the simplest of things are now the hardest for me ....I'm plagued with fatigue, my balance is off, my speech Is impaired as i either stutter or keep repeating myself , i dont lkke tbe light , nauesea , inability on dahs to get dressed by myself, bath, huge anxiety and fear of the unknown, not allowed to drive for the foreseeable future. From someone who was so active , running and wallimg and on the go the whole time to be fully dependant on others has been so hard to swallow

Thankfully my own gp has now upped my anti seizure meds as I was getting them inbetween...he has listened to me, seen me cry alot , ramble on in my own way oer random words come out .... he has been great and referred me for counselling as he said my mental health has had a huge smack....I feel like a burden on everyone, feeling helpless, frustrated,angry why me and making hubby cut down work hours to be able to help me .

Then with all that's happening with me my hubbies father /grandfather passed away on Saturday and I feel so useless

Oir only Car failed nct last night on dangerous so that won't be going anywhere for now

I want to give the kids a Christmas they deserve with all they've encountered, pay up bills that are owed and get some oil into the house so we can have some heat in the house

I've been now diagnosed as having myoclonic seizures which impacts my ability to drive but one day at a time

Life is short so make the most of each day were blessed with

Thank you for taking the time to read this