Help The Delmage Family and Baby Molly

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53 donors
0% complete

$3,030 raised of $15K

Help The Delmage Family and Baby Molly

On December 7, 2020  my wife and I walked in to our OB office for our 20 week ultrasound.  Amanda had only gotten to see our second child through Facetime calls because of the pandemic, so this was also the first time she was getting to see our daughter in person. Everything was going great and then the ultrasound tech went from laughing and joking with us to almost completely silent. She informed us we would be seeing our doctor that day because something was wrong with our daughter's brain. We saw our OB who gave us two possible diagnoses, neither of which gave our daughter a good prognosis. We were then referred immediately to an MFM doctor. Our one hour appointment had turned into 4 hours of ultrasounds and 3 different diagnoses, We were then told to go get further testing in Indianapolis  at Riley Children's Hospital. After a whole day full of testing and meetings with different specialists, they finally came to the unexpected diagnoses of a Dural Sinus Malformation.  These types of malformations are extremely rare. Each one is a case by case basis and there is hardly any information to read. Needless to say, things did not look promising for our daughter and our world was flipped upside down. The next day, we found a specialist at Boston Children's Hospital who has published articles and treated this malformation before. We immediately reached out and started the process over again. After he was able to review all of the images from Riley, he agreed that this was a Dural Sinus Malformation and that we would have to have repeat testing in 4-6 weeks to see how we would proceed and where we would be delivering Molly. The next 6 weeks we researched everything we could to become as educated as possible about this mystery illness. We had ultrasounds to monitor every two weeks. We went back for our follow up and found out the malformation had grown. (To put it simply, the veins in her head are too big and compressing her brain.) Finding this out confirmed that we would probably be delivering our baby in Boston. Not only is it 14 hours away from our home and family, we also have to leave our two year old son with relatives for an unknown amount of time. Because of Covid, siblings are not allowed in the hospital or patient and family housing.  Due to the rarity of her illness and the impending need for intervention immediately after birth, we are expecting a lengthy stay and uphill battle for our sweet Molly. We are humbly asking for support in any way possible and we appreciate the love and support we continue to get on a daily basis from our family and friends. With your help we will be able to give our daughter the care she needs and deserves. Thank you so much. Love, The Delmage Family

Organizer

Mikayla Delmage
Organizer
Hobart, IN
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