- P
- C
Jack has been fighting an extremely rare condition called Severe Aplastic Anaemia since June 2019.
Aplastic Anaemia is so rare that only 2 in every one million people are diagnosed with it.
In June 2020 he was also given the additional diagnosis of Paroxysmal nocturnal hemoglobinuria.
Aplastic anemia is a serious condition affecting the body’s ability to make healthy blood, the bone marrow does not produce enough healthy blood cells. It is also known as bone marrow failure. Jack's diagnosis of Severe Aplastic Anaemia means the bone marrow is damaged (or in Jacks's case empty).
Paroxysmal nocturnal hemoglobinuria is a rare blood disease that causes the body to attack its own red blood cells causing them to break apart. Doctors call this breaking apart "hemolysis”.
Treatment for SAA and PNH are familial stem cell transplant (Jack did not have a match), ATG treatment with Cyclosporine and monthly IV Pentamidine. This is what he is currently doing.
So far Jack has had a partial response to this treatment. His last treatment option is a non-related donor stem cell transplant. For Jack (if needed) men between the ages of 17-35 are ideal but anyone can do it!
Jack is immune suppressed and at high risk of infection. For this reason, he has not been able to attend school since October 2019. The added pressure of Covid 19 means he is unable to see friends and family outside of his home.
Jack goes to the PMDU at Children’s Hospital every week for blood work, blood products as needed and dressing changes for a PICC line he had inserted for his medication and blood product delivery.
Once a month he has IV Pentamidine. IV Pentamidine is an antimicrobial medication used to treat pneumocystis pneumonia in people with poor immune function. As he is continuing on immune suppression drugs he remains vulnerable to infections.
Jack’s mom was fortunate to have caregiver leave for a while but unfortunately, she lost her job due to restructuring in the summer. As you can imagine the financial implications are sobering as Jack continues to fight his battle with SAA and PNH.
I have received a few messages about how to help support Jack. Jack and his mom are very dear people to me (for those who know me, Jack was one of Little Man's best friends, and Jack's mom, is one of my closest and oldest friends). I’ve set up this GoFundMe to help out a sick boy and a struggling single mom. Worrying about the health of your child shouldn't be compounded by the stress of worrying about how you'll pay the bills for basic living expenses.
Thank you to anyone who joins me in supporting Jack and his mom emotionally, and if you can, financially.
If you’d like to follow Jack’s journey please follow his dedicated Instagram story @superherokidjackmc
Aplastic Anaemia is so rare that only 2 in every one million people are diagnosed with it.
In June 2020 he was also given the additional diagnosis of Paroxysmal nocturnal hemoglobinuria.
Aplastic anemia is a serious condition affecting the body’s ability to make healthy blood, the bone marrow does not produce enough healthy blood cells. It is also known as bone marrow failure. Jack's diagnosis of Severe Aplastic Anaemia means the bone marrow is damaged (or in Jacks's case empty).
Paroxysmal nocturnal hemoglobinuria is a rare blood disease that causes the body to attack its own red blood cells causing them to break apart. Doctors call this breaking apart "hemolysis”.
Treatment for SAA and PNH are familial stem cell transplant (Jack did not have a match), ATG treatment with Cyclosporine and monthly IV Pentamidine. This is what he is currently doing.
So far Jack has had a partial response to this treatment. His last treatment option is a non-related donor stem cell transplant. For Jack (if needed) men between the ages of 17-35 are ideal but anyone can do it!
Jack is immune suppressed and at high risk of infection. For this reason, he has not been able to attend school since October 2019. The added pressure of Covid 19 means he is unable to see friends and family outside of his home.
Jack goes to the PMDU at Children’s Hospital every week for blood work, blood products as needed and dressing changes for a PICC line he had inserted for his medication and blood product delivery.
Once a month he has IV Pentamidine. IV Pentamidine is an antimicrobial medication used to treat pneumocystis pneumonia in people with poor immune function. As he is continuing on immune suppression drugs he remains vulnerable to infections.
Jack’s mom was fortunate to have caregiver leave for a while but unfortunately, she lost her job due to restructuring in the summer. As you can imagine the financial implications are sobering as Jack continues to fight his battle with SAA and PNH.
I have received a few messages about how to help support Jack. Jack and his mom are very dear people to me (for those who know me, Jack was one of Little Man's best friends, and Jack's mom, is one of my closest and oldest friends). I’ve set up this GoFundMe to help out a sick boy and a struggling single mom. Worrying about the health of your child shouldn't be compounded by the stress of worrying about how you'll pay the bills for basic living expenses.
Thank you to anyone who joins me in supporting Jack and his mom emotionally, and if you can, financially.
If you’d like to follow Jack’s journey please follow his dedicated Instagram story @superherokidjackmc
Organizer and beneficiary
Lauryn Malott
Beneficiary