
Help Give Etleva Ruçi's Sons a Fighting Chance
Donation protected
My name is Etleva Ruçi, and I am a mother fighting for the lives of my two sons.
A year ago, my oldest son was diagnosed with a rare genetic disease X- Linked adrenoleukodystrophy, that attacks the nervous system and muscles, slowly leading to paralysis and, heartbreakingly, a fatal outcome. After months of hospitals, tests, and uncertainty, we finally got this devastating diagnosis only recently.
Now, my younger son — just 24 years old, a brilliant student who recently graduated in Economic Informatics with top honors — is showing signs that he may be affected as well. He has been working hard to support our family while I stay at home caring for his older brother.
Unfortunately, this disease cannot be treated in Albania. The only hope for my younger son — and potentially to slow or treat my oldest son — lies in specialized clinics abroad, where advanced treatments like stem cell therapy or gene therapy are available. But the costs are overwhelming and far beyond our family's means.
I have never asked for public help before, but as a mother, I am now humbly reaching out to you — to anyone who can help us save my sons. Every donation, no matter how small, brings us one step closer to hope, to life, to a future.
Please help us in this fight. We are deeply grateful for your kindness, generosity, and prayers.
With heartfelt thanks,
Etleva Ruçi. Hi everyone. Most of you know I am Etleva’s sister in law. Even though we’re far in distance, we are trying to help her as much as we can with all we can. Thank you to all of you supporting her to fight this battle. May God bless all of you and your family. Vjollca Pine
Organizer
Vjollca Pine
Organizer
Jacksonville, FL