Raedyn's Journey Home
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Hi everyone, I would like to introduce myself...My name is Raedyn Hayz. I was born on April 2nd 2021. I hear this year has been a crazy one for most in this big place called the world but it's been a huge uphill battle for me and my family ever since I got here. Let me tell you, it was so comfy cozy in my mommy's belly and then bam! Everything changed so fast! When I was in my mommy's belly my daddy was always right by our side. Talking to me, rubbing mommy's belly so I knew he was there, making mommy laugh and I would just shake inside haha. But now? He is only there sometimes, some days not all the time like before. He always makes sure to check on me but I hate when he kisses me goodbye. He tries to hide his tears most days but I know it's sad for him too. My big strong brother Julian was always reading books to me and telling me jokes from outside mommy's belly and now I don't hear him anymore He was always checking up on mommy and he always made sure me and mommy were safe. But now he hasn't been able to do that like he used to. When I talk to him he tries to be brave but I know he is scared and so sad. He wants to hold me and play and so do I! I haven't even got to feel his sweet face in person. I can only see him or hear him through this fancy television thing. My big sister Abryanna would come visit us all the time and I could hear her sweet voice talk to me. She would tell me all the things she couldn't wait to do with me. She said she would even change my diaper when I got home haha. Her and brother would talk about who was going to hold me first, or who was going to feed me and play with me. But now I don't hear her voice and they don't play argue about that stuff anymore because I am so far away from them. I just want her to be able to give me hugs and she can't. I remember mommy being so excited for me to see my new room, she worked so hard on decorating and getting all my things in just the right spot...and now I haven't even got to see it yet. I haven't even got to sleep in my own comfy crib. Luckily, my mommy has been right by my side, every day, every hour, every minute through the good and bad times with me. She has slept in my hospital room with me and when she doesnt sleep there she leaves when the sun has gone down and I'm fast asleep and then comes back as the sun comes up right when I'm opening my eyes. She comforts me way more than she knows but I know her heart hurts. I can feel her tears rolling off her cheeks when she thinks I'm sleeping and I hear her prayers at night just asking for me to be protected over and that our family can be all together again. Shes so tough but I wish she didn't have to be. I know she misses the life she once knew too. But I also know she would do anything for me, she's amazing!
Thank you for taking the time to read our story! I thought I would just briefly fill you in on Raedyn’s history and his future! Our sweet boy was born with a very rare genetic syndrome that has affected him from his head to his toes, literally. He came out fighting and has shown us every single day how badly he wants to be here with us, so we too have fought for him! As many people have noticed, Raedyn has some noticeable differences in his appearance, but that’s just the tip of the ice berg. Our sweet little boy has had battles much more serious on the inside. This far Raedyn has undergone 10 surgery procedures and like we stated above, he will still need a handful more in his next few years of life. Raedyn’s condition will not be “fixed” with surgery.. we are just helping him in the right direction to succeed in his perfect little body! A lot of his future is still unknown so we take it day by day and pray for the absolute best. He will need many many therapies in his first few years of life. He will need to learn a way of communicating, wether that be sign language or some sort of electronic way of speaking through a computer or device. He will need physical therapy to learn how to use his limbs in a more sustainable way, and he will need tools to help him along the way such as special chairs, strollers, walkers and hearing devices. Raedyn will always need “extra”” accessories” but thats ok, we are just learning what we need to support him in that! Our families life will never go back to “normal” and I think selfishly that has been the hardest part for us all, we have worked very hard to build up our life and have the things we have. We have a brand new home we just bought in Cheyenne, where our walls are filled with our memories. We will have to pack up our life and come to the very expensive city. Rufus will be traveling back and forth to Cheyenne daily to work for now anyways, while I stay here with our boys. Julian will be starting school here in Denver this fall, and I will take care of Raedyn and his needs full time as his nurse. He will need 24/7 care and at night he will need a in home nurse to watch him while we try to get some sleep. And the hardest part of this move will be having Abryanna staying behind in Cheyenne. We are so blessed to have had all the extra time with her these last few months and we will be back and forth to Cheyenne to see her as MUCH as we possibly can! We are proud of her and all she has been doing lately, and we will not miss the things that make her happy! But we know we are making this choice right now for Raedyn, and we have all decided that what’s best for him is to be close to his team. So with that being said, this move is going to be pricey. Every little thing adds up, and unfortunately I have been out of work since Raedyn was born and Rufus has been doing his absolute best supporting us through this terribly hard situation! We love and appreciate EVERY single thing you all have done, and that’s really what has pulled us through! All the love and prayers have shined that light on our path! So thank you from the bottom of my heart! We love you all and I cannot wait for the day you all can meet our little miracle ❤️ much love and god bless!
My life has been so scary and rough. When I thought about coming out of mommy's belly and into this world I never thought I would have to fight so hard. I never thought I would be so scared or have to be in so much pain alot of days. But I'm fighting, and I won't stop because the one thing I hold on to is the hope we can all be together as a family once again one day. Under one roof, in one room, all together, laughing and playing. Just doing all the fun things we are supposed to be doing all together. I am working so hard at doing my part to make this happen. I am going through the big surgeries I need and I am going through the therapies every single day. I am now trying to let this tubie in my belly feed me so I can grow big. I am trying to let this tubie in my throat help me breathe better and I'm trying to be a brave big boy until I can go home. My mommy and daddy tell me that my rough road will never go away sadly. I will have to continue to fight hard every day to keep going. I will have to keep visiting my "big people" team and have to go down to the big scary room more times even after I go home but I will be able to get to some rest stops every now and then where I can enjoy time with my family and just be the baby I am suppose to be right now I can not wait for those days. My family can not wait for those days! But I now need your help please! In order for me to be close to my team of "big people" and get all the help I need to just live this thing called life, my family will have to make a big move to this place called Colorado. I don't know how far away this place is but I know it's hard for my family to make this decision. I know my mommy loves her house she has now and she likes her friends and family there. She was hoping to go back to work again after I got a little bigger and now can't. My daddy likes the job he works at too. He likes this place called Cheyenne and all the people he knows there. I know my brother doesn't want to leave his big boy school or his friends there and I know my sister won't be able to visit every day like she loves to do. But they all said they will do this for us to be together and for me to be able to just be in their lives. They are super great huh? I wouldn't trade them for anyone else in the world that's for sure! But because my mommy has been by my side every single day, learning all the new things about me and what I will need when I go home she hasn't been able to to to work. She is now going to go to school to be able to "officially" take care of me as my nurse. Shes so smart and caring and I love her for this! But this can only happen in Colorado. And because daddy has had to drive back and forth to see me especially on days when I made them really scared, he has not been able to work as much. He says he will be having to travel back and forth to keep his job in Cheyenne still for now. This is going to be tough but he said he'll do it for me and our family. I know we need new things in order for my "big people" team to even think about letting me go home. These things are like a new house near my team, a truck to move all our stuff, new special chairs and equipment for me, and just a way to make a new house my new home. Can you please help me and my family? I know I don't know some of you yet but I hope to one day. I have felt more love in my little 2 months of life than I could ever imagine in my dreams. So thank you so much already for praying so hard, thinking of me and my family and helping us all along this far. We couldn't have done it without you all! I love you all and may God bless all of your journeys, today tomorrow and always!
Love,
Raedyn Hayz
#RiseWithRaedyn
Thank you for taking the time to read our story! I thought I would just briefly fill you in on Raedyn’s history and his future! Our sweet boy was born with a very rare genetic syndrome that has affected him from his head to his toes, literally. He came out fighting and has shown us every single day how badly he wants to be here with us, so we too have fought for him! As many people have noticed, Raedyn has some noticeable differences in his appearance, but that’s just the tip of the ice berg. Our sweet little boy has had battles much more serious on the inside. This far Raedyn has undergone 10 surgery procedures and like we stated above, he will still need a handful more in his next few years of life. Raedyn’s condition will not be “fixed” with surgery.. we are just helping him in the right direction to succeed in his perfect little body! A lot of his future is still unknown so we take it day by day and pray for the absolute best. He will need many many therapies in his first few years of life. He will need to learn a way of communicating, wether that be sign language or some sort of electronic way of speaking through a computer or device. He will need physical therapy to learn how to use his limbs in a more sustainable way, and he will need tools to help him along the way such as special chairs, strollers, walkers and hearing devices. Raedyn will always need “extra”” accessories” but thats ok, we are just learning what we need to support him in that! Our families life will never go back to “normal” and I think selfishly that has been the hardest part for us all, we have worked very hard to build up our life and have the things we have. We have a brand new home we just bought in Cheyenne, where our walls are filled with our memories. We will have to pack up our life and come to the very expensive city. Rufus will be traveling back and forth to Cheyenne daily to work for now anyways, while I stay here with our boys. Julian will be starting school here in Denver this fall, and I will take care of Raedyn and his needs full time as his nurse. He will need 24/7 care and at night he will need a in home nurse to watch him while we try to get some sleep. And the hardest part of this move will be having Abryanna staying behind in Cheyenne. We are so blessed to have had all the extra time with her these last few months and we will be back and forth to Cheyenne to see her as MUCH as we possibly can! We are proud of her and all she has been doing lately, and we will not miss the things that make her happy! But we know we are making this choice right now for Raedyn, and we have all decided that what’s best for him is to be close to his team. So with that being said, this move is going to be pricey. Every little thing adds up, and unfortunately I have been out of work since Raedyn was born and Rufus has been doing his absolute best supporting us through this terribly hard situation! We love and appreciate EVERY single thing you all have done, and that’s really what has pulled us through! All the love and prayers have shined that light on our path! So thank you from the bottom of my heart! We love you all and I cannot wait for the day you all can meet our little miracle ❤️ much love and god bless!
Organizer and beneficiary
Cassandra Kent
Organizer
Broomfield, CO
Natasha Kent
Beneficiary
