PRAY FOR OUR BABY DENAHII HE HAS SMA

Our beautiful boy has been diagnosed with Spinal Muscular Atrophy Disease  (SMA). This is when he’s muscles stop working and if untreated death will occur as it affects the breathing next. 
He is only 1 week old. We would like to make this go fund me page as we need as much support as we can for our little man.

Currently there is no cure for SMA and treatment cost $300,000 just for one injection. He will need multiple injections a year, however they won’t start these injections until he is showing muscle weakness.Currently our little man is showing no muscle weakness as of yet which is why I am doing this as it’s the best opportunity to start now before his symptoms occur the doctor has said as little as 6 weeks we will start to see so we need to start something now. Our little man will be going to Sydney Childrens hospital to begin a trialto start his medications and hopefully they will slow down or prevent the disease from coming so quickly. We need help financially as staying and travelling to Sydney is going to be a lot for us as we can not live off one income as well as trying to manage our little man. Please give us the love and support you can. We are young parents ourself and we are trying so hard tobe strong.

@Denahii’sSMAJourney 

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