
Help Nolan fight his kidney disease
Donation protected
Hi, my name is Nikki Riddle. I met Nolan and the Schroeder family in 2013 when Brady and Nolan were both in Kindergarten at Redtail Ridge together. Little did I know, that Nolan would become like a son to me and family to Brady and I. From school functions, to sleepovers, to watching Nolan play the game of basketball that he loves so much - I have witnessed Nolan grow into a 13 year old strong, stubborn, tell it how it is, smart, sweet young man. From short hair to long hair we've witnessed it all. We knew all along about Nolan's issues with his kidney's but not until recently did we full understand the gravity of what Nolan was about to face.
Nolan was born with a congenital defect called posterior urethral valves. These are obstructive membranes that blocked the flow of urine causing it to back up to his bladder and kidneys. Because this was discovered late (when he was 3 1/2) they were able to do surgery to remove the obstruction however, there was significant damage to both of his kidneys. Since then they had been working with a nephrologist at the U of M to mange his chronic kidney disease with medication. They were told that Nolan would probably need a kidney transplant around puberty - and here we are approaching Nolan's 14th birthday in February. His kidney disease has progressed to stage IV. This past September the decision was made to proceed with a transplant evaluation which he was approved by Mayos transplant committee but listed as temporarily inactive on the deceased donor list pending one additional test that was scheduled for Dec 10th. Last Monday Dec 8th Nolan woke up with severe flank pain, nausea and painful urination - which was a urinary tract infection. Aaron took him to the pediatrician where they gave him a shot of antibiotics to get in his system and have him take at home. On Dec 10th we went to the appointment in Rochester. His labs showed significant reduced kidney function. The Dr asked us to come back Friday to re check the labs and if there was not substantial improvement they would need to do surgery to put a port in and begin dialysis. After surgery was performed they gave him an abbreviated round of dialysis Friday night and again Saturday morning.
From this point forward Nolan will continue to need dialysis at St Mary's in Rochester 3 times a week for 3 hour each time until he is able to receive a transplant. Now they begin the search for a living kidney donor. Aaron and Kim were planning on being able to give Nolan one of their kidney's but found out they prefer the donor to be under 40 since he is so young. Nolans blood type is 0 which means the donors blood type needs to be 0 as well. If anyone is interested in condsidering donation please visit https://www.mayoclinic.org/livingdonor
From round trip rides to Rochester MN from Savage MN (which is an hour and a half) 3 times a week - to needing to stay in Rochester for at least a month when he receives the transplant and they will have hotel/airbnb costs - to immunosuppressants that he will need following the transplant surgery for the rest of his life that will make sure Nolan's body doesn't reject the kidney ($30k). They do have health insurance but there will be substantial out of pocket bills that Kim & Aaron will have to cover.
I'm asking for us to rally as a community around Nolan - who has already made so many sacrifices due to this disease - and unfortunately will have more. No donation is too small - please lift Nolan, Kim, Aaron and Avery up in your thoughts and prayers and send them all the love and strength they deserve. Nolan - you are a fighter and like I tell you "you are a badass" you will beat this and we will all be here to have your back.
Thank you from the bottom of all our hearts. We love you Nolan #55 and every basketball game win is for you buddy.
Organizer and beneficiary
Nicole Riddle
Organizer
Savage, MN
Kimberly Schroeder
Beneficiary