Our daughter, Meghan, was born without oxygen, which resulted being diagnosed with Hypoxic Ischemic Encephalopat (HIE) stage 2. It is a type of brain injury. After one months in intensive care, she was allowed to go home with us, not knowing it will be the beginning of a longer journey. These type of HIE injuries can later cause different epilepsy syndromes as well as cerebral palsy. At almost 3 months old, she began to have Infantile Spasms, Focal and Tonic Clonic seizures. She is over a year old now, spent more than half of her life in the hospital as we have been to 4 different countries for help and tried over 12-15 different medications to control her seizures. Unfortunately, none worked until we have been introduced to a Ketogenic diet alongside acupressure therapy and cheropactor, which allowed her condition to improve. What is key about her condition is that Infantile Spasms stops babies to develop all in all. Our daughter being over a year old means she supposed to attempt on walking around. Sadly, she is yet to learn to crawl, hold herself up and seek interests in toys. Before this special diet, she laid flat with 100 spasms and seizures a day and since beginning these treatments, she is now able to hold her head on her belly. Step by step she is showing signs of improvement under this new care. Well, here is the tricky part, the EU insurance does not cover her Ketogenic diet whilst her acupressure and some additional therapies has to be private too. Her Ketogenic diet comes with a special formula designed by Nutricia. This called KetoCal 3:1, which cost around £40-50 per can. Meghan needs 10 cans per month as she is not allowed to eat anything else at the moment. She is to attend acupressure everyday for 6 months and then 3 times a week for another 6 months in addition to other therapies to aim to catch up on her global delay much as possible. Each visit cost £40. The estimated length of the treatment is 9-12 months, which will cost roughly $15000. For this reason we are asking for your support, to give our daughter a chance to live a fully normal life like you and me.
  • Maja Saran 
    • £500 
    • 22 mos
  • Anonymous 
    • £25 
    • 22 mos
  • Sarah Mazouz 
    • £50 
    • 23 mos
  • Gili Cohen 
    • £30 
    • 23 mos
  • Anonymous 
    • £15 
    • 23 mos
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