Help Jacob Peterson Make Every Mile Count for Dystonia

Help Me Make Every Mile Count for Dystonia Awareness and Research

Hi everyone,

In April 2025, I will finally be fulfilling a dream years in the making—running the Boston Marathon. In 2019, I was fortunate enough to qualify, but an injury just weeks before the race kept me from starting. Now, I am stronger, more determined than ever, and ready to conquer those 26.2 miles. But this time, I want to make it about more than just crossing the finish line.

While I train, I am raising funds for the Dystonia Medical Research Foundation (DMRF) to support individuals living with dystonia, a rare and often debilitating neurological disorder. Dystonia causes uncontrollable muscle contractions, leading to painful movements and postures. Treatments can be incredibly expensive, including medications, physical therapies, and, for some, deep brain stimulation (DBS)—a procedure that has transformed lives but remains financially out of reach for many.

This year brought new hope. The FDA recently approved a Humanitarian Device Exemption (HDE), expanding access to DBS for individuals with different forms of dystonia. This is a monumental step forward, but there is still so much work to do to ensure everyone who qualifies can afford this life-changing treatment.

Your support can help provide:

Assistance with medical and treatment costs for individuals with dystonia.

Resources for families navigating the challenges of this condition.

Continued research into better treatments and a cure.

Running Boston has always been a personal goal. This year, I want it to mean even more by running for those who need hope, relief, and the chance to live a better life. Every donation—big or small—will make a difference and bring us closer to a world where dystonia is no longer a barrier.

Thank you for joining me on this journey and for supporting such an important cause. Let’s make every mile count together!

With gratitude,

Jacob Peterson