Dystonia Medical Research Foundation

The mission of the DMRF is to advance research for more effective treatments and ultimately a cure for dystonia, to promote awaren...Learn more

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CAMERON HILL is fundraising
Support Cameron and the Dystonia Medical Research Foundation
Support the Dystonia Medical Research Foundation's life-changing work.

My name is Cameron, and I’ve been living with dystonia since 2015.

Every day is a challenge, something as simple as walking, writing, or even speaking clearly can become a struggle. Dystonia is a frustrating and often misunderstood neurological condition that causes involuntary muscle contractions, twisting, and abnormal postures, and yet, there is still no known cure.

That’s why I’m raising money for the Dystonia Medical Research Foundation. It's one of the leading organisations funding research to better understand dystonia and develop effective treatments. Their work gives me and thousands of others hope.

My goal is to help accelerate research so we can find a real cure by 2028–2029. That might sound ambitious, but with your help, it’s possible.

Your donation will go directly to DMRF’s work, supporting scientists, studies, and potential breakthroughs that could finally end the suffering caused by this condition.

Please donate today and share this campaign. Every dollar gets us closer to a cure. Every share spreads awareness.

Thank you for your donation!

Cameron.
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7 supporters
Taiyo Oishi is fundraising
Concert for Dystonia: Musicians in Need
The Evergreen Encore Foundation will be partnering with the Dystonia Medical Research Society to raise funds for dystonia research! Dystonia affects over 250,000 individuals in the United States alone; musicians are particularly prone to developing dystonia throughout their careers. Attend our fundraising concert on January 19th, 2025, at Northwest Pianos (5:00 PM) to experience an inspiring fundraising concert by talented high school musicians! From piano to viola to alto saxophone, we have it all! We hope to see you all there!
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8 supporters
Jacob Peterson is fundraising
Help Jacob Peterson Make Every Mile Count for Dystonia
Help Me Make Every Mile Count for Dystonia Awareness and Research

Hi everyone,

In April 2025, I will finally be fulfilling a dream years in the making—running the Boston Marathon. In 2019, I was fortunate enough to qualify, but an injury just weeks before the race kept me from starting. Now, I am stronger, more determined than ever, and ready to conquer those 26.2 miles. But this time, I want to make it about more than just crossing the finish line.

While I train, I am raising funds for the Dystonia Medical Research Foundation (DMRF) to support individuals living with dystonia, a rare and often debilitating neurological disorder. Dystonia causes uncontrollable muscle contractions, leading to painful movements and postures. Treatments can be incredibly expensive, including medications, physical therapies, and, for some, deep brain stimulation (DBS)—a procedure that has transformed lives but remains financially out of reach for many.

This year brought new hope. The FDA recently approved a Humanitarian Device Exemption (HDE), expanding access to DBS for individuals with different forms of dystonia. This is a monumental step forward, but there is still so much work to do to ensure everyone who qualifies can afford this life-changing treatment.

Your support can help provide:

Assistance with medical and treatment costs for individuals with dystonia.

Resources for families navigating the challenges of this condition.

Continued research into better treatments and a cure.

Running Boston has always been a personal goal. This year, I want it to mean even more by running for those who need hope, relief, and the chance to live a better life. Every donation—big or small—will make a difference and bring us closer to a world where dystonia is no longer a barrier.

Thank you for joining me on this journey and for supporting such an important cause. Let’s make every mile count together!

With gratitude,

Jacob Peterson
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1 supporter
Jacob Peterson is fundraising
$2620 Before 26.2- Dystonia Research
Want to join me in making a difference? I'm raising money for Dystonia Medical Research Foundation, and any donation will help make an impact. Thanks in advance for your contribution to this cause that means so much to me. I am trying to donate the money to the DMRF before the Boston Marathon (4/15/19) and represent the DMRF charity at the Marathon as well.

More information about Dystonia Medical Research Foundation: Dystonia is a debilitating movement disorder that prevents the brain and nervous system from functioning properly. Dystonia causes muscles in the body to contract or spasm involuntarily. The mission of the DMRF is to advance research for more treatments and ultimately a cure, to promote awareness and education, and to support the well being of affected individuals and families.

This is especially important to me because my sister Abby and I have both been diagnosed with Myoclonus Dystonia and our cases aren't nearly as severe as some of the cases we have seen at the Dystonia Symposium. We know how blessed we are to have more mild forms of Dystonia.

As a runner, I always ran just for a PR but now I want to also run to help those who can't and who won't fulfill their dreams in life as I live out one of mine this Spring.

At the Chicago Dystonia Symposium- With Billy McLaughin (Musician, Guitarist, who has Focal Dystonia in his hand and retrained himself to play a new" left-handed hammerstyle")

VERY COOL VIDEO OF BILLY BELOW:
https://www.youtube.com/watch?v=CXLqwLLftdk

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36 supporters

About Dystonia Medical Research Foundation

The mission of the DMRF is to advance research for more effective treatments and ultimately a cure for dystonia, to promote awareness and education and to support the well being of dystonia affected individuals and families.

One E. Wacker Drive Suite 1730Chicago, IL 60601-1980

Find Dystonia Medical Research Foundation at

Causes

Musculoskeletal diseases, Brain and nervous system disorders

Established

1980

Tax ID

95-3378526

NTEE code

Brain Disorders

Dystonia Medical Research Foundation is a 501(c)(3) public charity, EIN 95-3378526. Donations are tax-deductible. Select content is provided by GuideStar.

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Dystonia Medical Research Foundation

Support Cameron and the Dystonia Medical Research Foundation

Concert for Dystonia: Musicians in Need

Help Jacob Peterson Make Every Mile Count for Dystonia

$2620 Before 26.2- Dystonia Research