Hi I’m Claire, and with my husband Mick are the proud and loving parents of Hudson who has a rare genetic disorder (D2HGA). Lately he has been enduring above and beyond what a child should. After speaking with his specialists for metabolism, heart, spine and lastly palliative care, they have all come to the conclusion his brain wants to fight but his organs are giving up. Now he’s at the ‘end of life’ stage we want to give him the best and happiest times with his two siblings, Xavier and Phoebe, so we are creating a bucket list for Huddy. Any ideas and/or free tickets will not go astray. Huddy will be 13yo next month and you can follow him on Facebook: Hudson’s Journey with D2HGA. Here we will post all the inspirational memories from your contributions and so we thank you with all our hearts.