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So it’s called Craniosynostosis and essentially means that part of his skull has fused too early which will result in uneven head growth and could cause his brain to move in the opposite direction it should
The procedure he is having is called an Endoscopic Extended Strip Craniectomy in which they will open his skull and de-fuse the skull.
As a result he will be In a helmet for at least a year which is not covered by ohip nor insurance.
As long as the surgery goes according to plan he will only be in hospital for 1-2 nights but will have to go up to Toronto twice before, 4 times right after and then at least once a month for the next year to two years.
Because of Covid only one parent is allowed in the hospital so any appointments (especially early ones) will have to have a hotel for the other parent to stay while one goes in.
The procedure he is having is called an Endoscopic Extended Strip Craniectomy in which they will open his skull and de-fuse the skull.
As a result he will be In a helmet for at least a year which is not covered by ohip nor insurance.
As long as the surgery goes according to plan he will only be in hospital for 1-2 nights but will have to go up to Toronto twice before, 4 times right after and then at least once a month for the next year to two years.
Because of Covid only one parent is allowed in the hospital so any appointments (especially early ones) will have to have a hotel for the other parent to stay while one goes in.
Organiser and beneficiary
Jessie Willoughby
Beneficiary

