Help Graysen Fight MPS1

Hello Friends, Meet Graysen Bean, son of Joseph and Joanie Bean and grandson of Pat and Billy Bean and Susan and Glenn Conner. Little Graysen is seven weeks old and has Mucopdysaccharidosis Type 1 (MPS1), Hurler Syndrome, a rare genetic disorder where his body can't break down the sugars that build up and cause damage to his whole body. MPS1 is a severe condition that can impact Graysen's development over time and could result in death. Little Graysen, his mom, dad and grandparents need our financial help to care for and support Graysen over the next year of his life and beyond as he fights MPS1.

Little Graysen's best option is a bone marrow/stem cell transplant, a year-long process. Between 3 and 4 months of age, little Graysen will check in at the hospital (Duke). After ten days of guarantine, he will undergo high-dose chemotherapy for ten days that will wipe out his immune system. Once the stem cell infusion begins and is complete, he and his extended family will remain in or near the hospital for 100 - 180 days to be monitored closely. During this time, there will be frequent checkups and bloodwork, which will continue after Graysen is allowed to return home.

Even with a successful stem cell infusion, doctors warn the chance exists that his body would reject the treatment. The first year will be critical and difficult for Graysen and his family. Graysen will face other challenges as time passes because the treatment will not correct everything. Graysen will face lifelong surgeries to help him live a close-to-normal life. Still, the family remains hopeful for the best outcome and is grateful for your prayers and support.