Our beautiful daughter, Phoebe, is just two years old, yet she has already faced more than most people will in a lifetime.

Phoebe was born with Shwachman-Diamond Syndrome (SDS), a rare genetic condition that causes bone marrow failure and leaves her unable to fight infections like other children. After countless hospital admissions, blood transfusions, medications and procedures, she underwent a lifesaving stem cell transplant in June 2026.

We hoped the transplant would be the beginning of a healthier future, but Phoebe is now battling a serious adenovirus infection while her new immune system is still developing. Although she is receiving treatment, the virus has been incredibly difficult to control.

There are treatments available that could give Phoebe the best possible chance of overcoming this infection, including virus-specific T-cell therapy and BCV (brincidofovir). These treatments are not always routinely available, and in some cases families may need to access them privately or overseas at enormous cost.

We never imagined we would find ourselves asking for help, but we would do absolutely anything to give our little girl the greatest chance of growing up healthy.

Every donation, no matter how small, will go towards:

* Accessing advanced treatments such as virus-specific T-cell therapy or BCV if needed.

* Travel and accommodation if treatment is only available outside the UK.

* Medical costs that are not covered through routine NHS care.

* Supporting Phoebe throughout her recovery.

If we are fortunate enough that these funds are not needed for Phoebe’s treatment, every remaining penny will be donated to charities supporting children with Shwachman-Diamond Syndrome and families facing stem cell transplantation.

If you are unable to donate, simply sharing Phoebe’s story would mean the world to us.

Thank you for standing beside our family during the hardest time of our lives. Your kindness, generosity and support give us hope every single day.

With love,

Phoebe’s family