Help for Rybuggie

As y’all know, Ryan suffered a cluster of seizers last month and they performed a lot of testing to find the cause. We’ll last week we received a phone call that would change my life forever. Ryan has been diagnosed with a very rare genetic disorder. It’s called stxbp1 point 1 mutation. I have had a hard time researching it because it is so hard to except right now. Their is no cure and the cases differ by person. Right now I have found a pediatric Doctor in Philadelphia that has treated the most cases of this disorder. Because it is so rare their is not a lot of information for treatment. The Doctor told us today that the sooner we get a Ryan there to be evaluated and treated the better for the impact this is going to have on her life. I created this go fund me because I need help getting my daughter the help she needs right now and time is crucial. This is going to be a long road for me and my family but we are strong in our faith and ready to fight the fight for our girl, anything will help at this point ❤️