
Help Evie blast her Neuroblastoma!
(03/11/2030) UPDATE:
We’re moving on up! Back to the 10th floor (oncology) Evie’s surgery went well, they were able to remove 90% off the tumor (thank God). She is currently in the PICU recovering and Shell be moving up stairs today. They have started an aggressive treatment to combat her OMS, she’s done IVIG which will continue monthly for the next year. She is starting a steroids regiment to stop the her body from producing anti bodies. She has some more scans next week, to figure out what stage and where to go from here. Thank you all for your prayers and support. Well keep everyone updated as news comes in. You all have a special place in the behrens heart!
Hi All,
I am writing on behalf of a sweet 21 month old bay girl, Evie Behrens.
Evie is an absolute joy to have as a part of your world.
She lights up the room anytime she comes barging in (and boy does she make an entrance). She can make the
worst day into the best day with a simple head nod for more food. She loves to play outside and would live in
the sand and water if you let her. She will eat everything including your finger if given the chance. She will fake
you out every time you ask her to blow a kiss, but will
always share her food and toys through FaceTime. She
is resilient, she's strong, and she's a fighter.
Evie was recently diagnosed with Opsoclonus-Myoclonus Syndrome (OMS) and a Neuroblastoma on her spine. Evie’s tumor is malignant and located in the middle of
her spine. The OMS and the location of her tumor are
causing her to have motor difficulties, tremors, ataxia
and rapid movements of her eyes. She is irritable and
frustrated all the time. She can’t eat, sleep, or play
normally. The three basic things a 21 month old should be loving right now. She has been in and out of the
hospital for the last two weeks, she has been poked and prodded and in big scary loud MRI machines. Now she is finally scheduled for her first (and hopefully last)
surgery today (March 9, 2020) to have this cancerous
tumor removed. Afterward she will need to have
chemo radiation to kill the cancerous cells and a year of steroid treatments to treat the OMS.
If you know Kristina & Bob (Evie's parents) you know
they are too proud to ask for help. Kristina & Bob are 3 months pregnant with their second child and given the
extensive medical treatments, impending surgery, and
recovery, they will not be able to work for the next two months. They are accumulating hospitals bills, and were flat out unprepared for something of this magnitude
shifting their lives. They need prayers, they need
support and lets help them with some of their finances.
We are hoping to raise $40,000 to help pay for Evie’s
hospital bills and help them get through the next 2
months until they can get back to work and back on their feet. Any donation is greatly appreciated, if you choose not to donate please just spread the word about our
sweet girl and keep her in your thoughts and prayers!
#evieblastsherneuroblastoma