Help Elisa Get Treated for Williams Syndrome
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My name is Linda Zavala, and I address you with all due respect, pleading for a few minutes of your time to read the story that my husband and I want to share with you.
Our daughter, Elisa Krystel, is a 10-year-old girl, born in Honduras, where we are from. She is a miracle of life, with a clinical history of Supravalvular Aortic Sternosis. Her first surgery was on August 27, 2013, and since then, she has been receiving treatments to control blood pressure.
In April 2019, Elisa was operated on again. The report after this second surgery was satisfactory. By this time, she was clinically diagnosed with WILLIAMS SYNDROME.
In October of the same year she had to return to the operating room, her aortic artery had narrowed again.
In addition to her heart problems, she has presented a problem of scoliosis and other conditions due to Williams Syndrome, for which she has not been treated either.
At the beginning of 2020, we made the decision to come to the United States, looking for a better quality of life for Elisa and her brother Haniel. Due to the syndrome that she suffers, the doctors consider that she should be in constant vigilance of specialists. But unfortunately, during all this time and to date, we have not had access to insurance because we do not yet have a social security number.
Elisa currently takes medications, not prescribed by a specialist, but by doctors from a pediatric clinic, who have been our only support so far. In this clinic, they do not have specialists that can give an updated and accurate diagnosis about Elisa’s.
As parents of our “miracle” girl, we are desperate. We keep our hope alive and knock on every door through which we can see a ray of light, so that our princess can receive the blessing of being analyzed by a cardiologist. That is our request. It is the only thing that we humbly beg of those who can hold our hand and feel the support we need to continue fighting this tough battle.
Our greatest and only dream as Elisa's parents is for our daughter to live a healthy life. The thought that something could happen to our little girl is devastating to think about.
It is urgent that Elisa receive the medical attention that she needs but unfortunately, all the doors we have knocked on have not been opened. We hope that God will continue to take care of her as He has done so far. Meanwhile, we are still waiting for angels to help her to live healthy and happy.
Thank you for answering our call. We will be eternally grateful.
Linda Zavala
Mauricio Carranza
Our daughter, Elisa Krystel, is a 10-year-old girl, born in Honduras, where we are from. She is a miracle of life, with a clinical history of Supravalvular Aortic Sternosis. Her first surgery was on August 27, 2013, and since then, she has been receiving treatments to control blood pressure.
In April 2019, Elisa was operated on again. The report after this second surgery was satisfactory. By this time, she was clinically diagnosed with WILLIAMS SYNDROME.
In October of the same year she had to return to the operating room, her aortic artery had narrowed again.
In addition to her heart problems, she has presented a problem of scoliosis and other conditions due to Williams Syndrome, for which she has not been treated either.
At the beginning of 2020, we made the decision to come to the United States, looking for a better quality of life for Elisa and her brother Haniel. Due to the syndrome that she suffers, the doctors consider that she should be in constant vigilance of specialists. But unfortunately, during all this time and to date, we have not had access to insurance because we do not yet have a social security number.
Elisa currently takes medications, not prescribed by a specialist, but by doctors from a pediatric clinic, who have been our only support so far. In this clinic, they do not have specialists that can give an updated and accurate diagnosis about Elisa’s.
As parents of our “miracle” girl, we are desperate. We keep our hope alive and knock on every door through which we can see a ray of light, so that our princess can receive the blessing of being analyzed by a cardiologist. That is our request. It is the only thing that we humbly beg of those who can hold our hand and feel the support we need to continue fighting this tough battle.
Our greatest and only dream as Elisa's parents is for our daughter to live a healthy life. The thought that something could happen to our little girl is devastating to think about.
It is urgent that Elisa receive the medical attention that she needs but unfortunately, all the doors we have knocked on have not been opened. We hope that God will continue to take care of her as He has done so far. Meanwhile, we are still waiting for angels to help her to live healthy and happy.
Thank you for answering our call. We will be eternally grateful.
Linda Zavala
Mauricio Carranza
Organizer
Roxana Infante
Organizer
Miami, FL