I am creating this go fund me on behalf of my sister and her son Edward. My sister
isn’t Someone who asks for help and this
is completely outside her comfort zone,
but she is putting pride aside to help her son to make memories and see as much
as he can before he loses his sight.
Edward is 9 years old. We have only
learned that he is partially sighted and
that he has a number of eye disorders
such as: Myopia, reduced vision both eyes, Astigmatism and convergent squint
and including a very rare genetic disease Retinal Dystrophy which progresses to
complete blindness. Edward sight is
deteriorating rapidly and currently only has 6/24 vision, but there is also a
chance he could wake up with no
eyesight at all tomorrow. There is no
cure and no treatment to halt this
As a mother my sister is determined to
give him as many opportunities to see
what he can while he can. Like every
child Edward want to go to Disney World. My sister thought she had all
the time in the world to do that.The
family would love to make memories
with Edward together by having a
holiday of a lifetime and it’s important
they make these memories together. As a single mother of 4 children it may take a
few years to manage this. However
Edwards eyesight may have deteriorated by then. My sister is devastated and worried she won’t get the chance to give
Edward the holiday of his dreams. We
are trying to push for October this year with the hope some Covid restriction will be lifted.
I have seen the kindness and support in
people with this stuff before and
suggested that we put it out here to see
if we can make this a reality.
We do not expect anything but would be very grateful and appreciate any one
who can. Any amount is appreciated and We would be so grateful even if you can’t donate ( We know this year has been
hard on everyone financially ). If you
could please just share.
Thank you for taking the time to read.