Hello, my name is Chris, and I am looking for assistance with my daughters’ bills. Ayla was born prematurely, causing her little brain to have seizures at less than a month old. At around the age of 13 months Ayla began having respiratory problems that led to her being In PICU for 2 weeks with a new diagnosis of Asthma. At 18 months she had a spiral fracture to her femur while walking and taking a simple slow fall. Medical complications have increased from there. Ayla had her first treatment at the age of 9 that extended till 11 years old after an unrelated abdominal scan found a pelvic mass. About 6 months post her last treatment, Ayla fractured her back after it locked up doing the YMCA in school. This led to us finding out she had Osteoporosis. This was a blessing in disguise. It led us to finding out she had Lupus and finally getting some answers to all her medical issues. Ayla has an extensive list of diagnosis, see below, but this past year things have gotten worse for her. Back in January we received a call from her doctor requesting we be seen immediately. During this visit we were notified that Ayla had 2 masses in her thyroid. We proceeded with exams and tests while the stress and issues with her body caused her to have numerous Lupus flare ups. Ayla began Chemo 9 weeks ago and has just been extended for at least 6 more weeks. Today Ayla had to get her first infusion to help her fight Lupus as well. During all this we have also been notified Ayla at some point contracted, or became exposed to, Tuberculosis. Her Immunologist has now told us they will be attacking her body from every which way possible so that we can help her with everything, but sadly her already weak immune system will become almost nonexistent, thus causing her to be on antibiotics on a more regular basis till something gives.

Ayla's diagnosis

Migraines

Asthma

Allergies

Nephritis - Kidney function down to 85%.

Aorta dilation - One valve dilates too far.

Aneurysm of the heart - She has a clot in her heart that if it gets loose, will cause further pain and suffering.

Seizure Disorder

Pelvic Mass

Thyroid Mass

Osteoporosis

Lupus

Connective Tissue Disorder - Causes her to dislocate very often.

IBS

Depression and Anxiety

POTS - Causes dizziness and fainting without warning. Last year she was 4 or 5 steps from the bottom of the stairs at her school when she fainted without warning, rolled down the stairs. Lucky she only fractured her ankle that time.