Help Amelia kick ass out of LCH
Donation protected
To follow Amelia's journey..instagram is amelia dannis diary..https://www.instagram.com/ameliadannisdiary/ )
(at the moment there is no target every little penny counts,we would love to make that 'difference')
Amelia-Danni has been diagnosed with Langerhans cell histiocytosis (LCH) February 2018. Meely was a 'normal' healthy,loving,smiley,outgoing and caring big sister to her little brother Zayn before our lives came tumbling down with this news, through all this Amelia has remained that little girl we know .
Amelia was taken into Raigmore a number of times but on the 12th of February i took her back with her being in so much pain in her back and eventually was given an MRI on the 13th, from then on life has been a roller coaster to say the least.We got some results back there and then, they had found a growth which they thought was LCH. The following day we were taking down to Royal Aberdeen Children's Hospital,where she was then given X-rays,ultrasounds,another MRI and biopsy. Once Amelia recovered from her biopsy we got to head home, there was lots of coming and going, long weeks waiting and appointments always accompanied by my two 'rocks' my Mum and Dad (Grandma and Granda) . Once the final results were in we were phoned and asked to come back down here to Aberdeen,this is when it really hit home, my innocent little girl! Amelia went under another general anesthetic and now has had a hickman line fitted, this is where her chemotherapy will be given and bloods taken.
As Amelia's mammy,grandma and granda along with the rest of our family we would like to do anything we can to help raise awareness and help raise funds towards a number of things, towards Histio org foundation to help all the studies still being done and maybe one day fined a cause for this ilness, to RACH for all they do and continue todo for our sick children and for Amelia to choose something she has always wished todo whatever that may be when she overcomes and kicks the ass out of this monster. Amelia will have 6months of treatment here in RACH 1x weekly chemo and 3x daily steroids, for now we will take each day at a time but there may be a specialist in the USA we may look at going to, we will keep you all updated on this journey.
Langerhans cell histiocytosis (LCH) is a rare form of cancer but the most common of the histiocytic disorders and happens when the body makes too many Langerhans cells, these cells are a type of white blood cells, 50 kids in the U.K. are diagnosed with this each year and studies are still being done on LCH.
Love and thanks
Courtnay,Amelia and the rest of our family
(at the moment there is no target every little penny counts,we would love to make that 'difference')
Amelia-Danni has been diagnosed with Langerhans cell histiocytosis (LCH) February 2018. Meely was a 'normal' healthy,loving,smiley,outgoing and caring big sister to her little brother Zayn before our lives came tumbling down with this news, through all this Amelia has remained that little girl we know .
Amelia was taken into Raigmore a number of times but on the 12th of February i took her back with her being in so much pain in her back and eventually was given an MRI on the 13th, from then on life has been a roller coaster to say the least.We got some results back there and then, they had found a growth which they thought was LCH. The following day we were taking down to Royal Aberdeen Children's Hospital,where she was then given X-rays,ultrasounds,another MRI and biopsy. Once Amelia recovered from her biopsy we got to head home, there was lots of coming and going, long weeks waiting and appointments always accompanied by my two 'rocks' my Mum and Dad (Grandma and Granda) . Once the final results were in we were phoned and asked to come back down here to Aberdeen,this is when it really hit home, my innocent little girl! Amelia went under another general anesthetic and now has had a hickman line fitted, this is where her chemotherapy will be given and bloods taken.
As Amelia's mammy,grandma and granda along with the rest of our family we would like to do anything we can to help raise awareness and help raise funds towards a number of things, towards Histio org foundation to help all the studies still being done and maybe one day fined a cause for this ilness, to RACH for all they do and continue todo for our sick children and for Amelia to choose something she has always wished todo whatever that may be when she overcomes and kicks the ass out of this monster. Amelia will have 6months of treatment here in RACH 1x weekly chemo and 3x daily steroids, for now we will take each day at a time but there may be a specialist in the USA we may look at going to, we will keep you all updated on this journey.
Langerhans cell histiocytosis (LCH) is a rare form of cancer but the most common of the histiocytic disorders and happens when the body makes too many Langerhans cells, these cells are a type of white blood cells, 50 kids in the U.K. are diagnosed with this each year and studies are still being done on LCH.
Love and thanks
Courtnay,Amelia and the rest of our family
Organizer
Courtnay Johnston
Organizer
Scotland
