Michaels Heart transplant

August 2021 I was rushed to ER thinking I had the newest variant of Covid gasping for air and found out news that changed my life forever. Congestive Heart Failure (CHF). I remember thinking, I’m 2 weeks out from my 28th birthday and I just received a death sentence. The doctors told me that it can be managed and I still had the ability to live a long life with CHF. I have undergone multiple tests, multiple procedures, and seen multiple doctors, who all have been helpful in their own way, but I have had a constant rapid degeneration. When this all started the question was what caused it? After almost 2 years, it still can’t be explained or figured out and all medical experts say the same thing. That this such an extreme and crazy thing for it to happen to someone so young and it happen out of no where with no prior signs. I recently had a procedure where they went in through my neck to explore into my heart. After just 10 minutes they stopped under an emergency status with a new diagnosis. Complete heart failure requiring a transplant. Here I am almost 2 years later in and out of a hospital bed with a team of cardiovascular specialists and a transplant team because my heart has deteriorated and only works at a 18%. I take a large amount of medication 3 times a day and occasionally having to wear oxygen cause I can’t breathe. I have been told by the team that I’m in a very small percentile of people who have went down hill so quickly my timeline is unknown and my condition is extreme. I have lost everything due to this. My career, my sanity, abilities to do things and live, and myself. But what sucks and is most scary is the fact that I have custody of my 7 year old son, Landon, who is about to lose his dad. Words cannot explain how I feel and how scared I am. I’m all Landon really has and no child deserves to lose their protector and hero. I also sit here with no way to get my transplant or a temporary heart mechanism like LVAD due to medicaid telling me they won’t cover it. I now wait to Social Security to approve my medicare and disability which could take up to 6 months, time I do not have. I am asking for help and assistance because I cannot work and cannot pay for even the simple testing so I can be officially put on the transplant list and get a mechanical device put in. I have a lot of life yet to live and the desire to going. So please if you can help me I would greatly appreciate it and won’t forget what you have done for me and especially for Landon who is my everything and my reason to keep going. For everyone who has donated already I thank you so much more than I can express. And if you can’t donate then please a prayer, thoughts, and a share is also appreciated. Thank you everyone for taking the time to read and reach out.Hi, my name is Dana Marie. I am a Registered Nurse of 32 years, offering my words, heart and hands to my patients with no thoughts other than to ease pain and suffering. I have given prayers, dances and last wishes to the dying (it is amazing what a nurse can do with words). The right words, gentle touch and active listing allowed me the grace to work with some amazing patients and families. Of course, there have been very sad times of death and heartbreak, but I am here to tell you that it was worth every moment to have the gift of nursing to share. I am blessed and have born a witness to many complex and beautiful faces, for the last 15 years I have worked with Active-Duty soldiers that are at high risk for harm to themselves or others. Again, truly blessed to have someone in need who allows you to help carry their burden. Respectfully, Michael I have sat in front of this computer for hours to try to formulate my words, words to tell of what devastation COVID has done to my family. My son Michael has been suffering from heart failure for two years is a single parent of a 7-year-old amazing little boy Landon and he needs a heart transplant. Due to his illness, he has been on Medicaid during this time. Medicaid will not pay for a heart transplant because of his age (29), Medicare will pay if he can become qualified. The process to apply can take months, my son may not have months the transplant hospital in Colorado expressed he needs to be moved up on the list. However, the hospital wants him to show the ability to pay over 1 million dollars. The grief and fear facing this task is mindboggling. My nurse tells me to find a way, to buy insurance (it will not pay and then cancel my grandson's coverage because it is preexisting), a retirement fund. Sell everything? I could still not come close. A friend quoted me a bible passage that has resonated with me (like a bell going off in my head”. “Again, I tell you that if two agree about anything you ask for, it will be done for you by my father in heaven.” Matthew 18.19 I am here to ask for help with Michael's heart transplant and to request the prayers of each and everyone that takes the time to hear his story. Landon needs his father and I need my son. On bended knee, Dana Marie