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Getting Lennon to NAPA

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Hello, our names are Amber and Todd and Lennon Marie is our beautiful 18 mo baby girl. Lennon suffered a severe brain injury when she was born resulting in a number of long term conditions and disabilities such as Cerebral Palsy, Epilepsy, Dysphagia (difficulty swallowing), Cerebral Visual Impairment, and Bilateral hearing loss to name a few. We have a great rehab team through our states Early Intervention program as well as outpatient therapies that she attends every week. It is also our dream to help her participate in alternative therapies and interventions to help her progress as much as she can. An unfortunate turn of events this year, along with Lennon’s complex needs, requires one of us to stay home with her while the other is the soul provider for the family. Recently Lennon was accepted to attend an intensive therapy at the NAPA Center next May, which is an amazing therapy center in only in 5 locations around in the US. She would attend therapy every day 5 days a week for 3 weeks. This is a big opportunity to learn new treatments that we could implement at home and help her progress towards our mobility and feeding goals. Unfortunately it would all be out of pocket. We try to set aside as much as we can for alternative therapies for Lennon, but on this we may need a little help. Any little bit you are willing to give would help us out so much and we would be incredibly grateful.
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    Organizer

    Amber McDonald
    Organizer
    Columbia, MO

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