Fundraising for SMA (Spinal Muscular Atrophy)

Fundraising for SMA (Spinal Muscular Atrophy) campaign photo, 1 of 2Fundraising for SMA (Spinal Muscular Atrophy) campaign photo, 1 of 2

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182 donors
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€14,720 raised of €15K

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Fundraising for SMA (Spinal Muscular Atrophy)

Fundraising for SMA (Spinal Muscular Atrophy)

0% complete

€14,720 raised of €15K

182 donations
* Shannon to Liffey Charity Run 2021 *

Four of us will run 145km along the full length of the Royal Canal from Cloondara near the Roscommon/Longford border, all the way back to the River Liffey in Dublin City to raise funds for SMA Ireland (Spinal Muscular Atrophy)
SMA type 1 is the number one killer of infants under the age of 2.
SMA Ireland is a voluntary organisation, dedicated to raising awareness of Spinal Muscular Atrophy in Ireland and campaigning for access to treatment for all. Time is a critical factor when treating SMA, so one of their top priorities is the introduction of SMA screening to newborn babies in Ireland. 
https://www.smaireland.com/ 

We start the run on Friday 10th of December at 10pm and hope to finish before 6pm on Saturday 11th of December.
Wish us luck...!

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Co-organizers4

Daragh Crowley
Organizer
County Dublin
Jonathan OGrady
Beneficiary
Brian Fitzsimons
Co-organizer
Eddie Garry
Co-organizer
Paul Malone
Co-organizer
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