Funding Tim Boe’s fight against ALS

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46 donors
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$4,762 raised of $10K

Funding Tim Boe’s fight against ALS

Hi my name is Anna and I am fundraising for my two teenage daughters, Kadie and Kalli and their dad, Tim, for his fight against ALS. Tim turns 46 early February of this year and was diagnosed with ALS in May, 2021. He was having serious neurological symptoms months prior to his diagnosis, was misdiagnosed and had major neck surgery last February, and  was unable to work all of 2021.

Tim is living in Morro Bay, California and Kadie and Kalli live in McMinnville, Oregon. Tim lives alone and since his diagnosis has been receiving social security.  He has home healthcare that comes to his home six days a week for several hours each day to help him as he has been unable to take care of himself doing everyday things like write, eat, open boxes, and/containers, and taking a shower or getting dressed is a huge challenge.  Tim is using a walker but he needs things, like 24/7 care, a motorized wheelchair, a breathing machine, and medical bed. All of this takes months trying to navigate the system and so much paperwork to get the supplies and the care he needs.

Currently, Tim is in the process of moving out of the home he is living in, as it is not handicap accessible and his landlord will not accept his housing voucher. Travel back and forth from Oregon to California is a great expense with gas, hotel, food and/or airfare flying into San Luis Obispo, California.  Kadie and Kalli work hard every visit taking care of their dad’s everyday needs and now he needs help moving.

All funds raised will go directly to Kadie to disburse as needed. Please consider helping us fund Tim’s fight against ALS. All donations are a huge blessing to our family. 

Below is a message from Kadie posted on  social media July, 2021.  Talking about her dad and his diagnosis is hard on her. She says the words are hard to find.
 
To all my friends and family- 
Earlier this year my dad, Tim Boe, was diagnosed with ALS- “a nervous system disease that weakens muscles and greatly impacts a persons physical function.” That’s the definition given by google but it doesn’t even come close to elaborating what all this disease entails. 

It’s been one of the most painful and unexpected challenges my family has ever endured & the most frustrating part is knowing theres such little discovery on the illness. There’s no known cause or cure. Not one medication, not one treatment, not one magic potion could make this go away. There’s absolutely nothing my dad could have gone back and redone to escape this diagnosis. 
The past 6 weeks I have watched my dad try and navigate through this new “normal”. Everyday brings up new challenges, victories, struggles, emotions... the list goes on. My dad goes about each day doing the best he can to make accommodations in order to complete seemingly basic tasks. Things many people take for granted such as pouring a cup of coffee, washing your hair, & feeding yourself. 

He’s one of the strongest people i’ll ever know, if not THE strongest person i’ll ever know. 

It’s taken me a while to feel comfortable about opening up on social media, not only because I wanted to respect the privacy of my dad, but because I don’t want people to turn my authenticity into attention seeking. I now understand the fact that my family, my dad, and I need all the support we can get, and that’s why I’m taking the steps to be vulnerable. 

I have worked to make an Amazon registry list with some things that I feel would help easy some of my dads daily struggles. Truth be told, i’m not very tech-savvy, so I will be doing my best to link everything appropriately and answer any questions asked. My mom and I will also be working together to make a Facebook page with very specific details on the topic and ways y’all could help out if you feel inclined. 

I appreciate everyone’s thoughts and prayers during this time

Organizer

Anna Boe
Organizer
McMinnville, OR
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