Hi, I’m Amanda Eggen, and I’m raising funds for the RUNX1 Research Program (RRP).

As of April 15, I’ve been honored to work with RRP for six years. I love our team—but what drives me even more is our mission: to change the future for individuals with RUNX1-FPD.

RUNX1-FPD is a rare, inherited blood disorder. For some, it causes frequent bruising, bleeding, and allergic symptoms. But the most concerning impact is the significantly increased risk—up to 30 times higher than average—of developing blood cancer. The constant uncertainty that patients and families live with is what keeps me pushing for answers.

At RRP, we’re working toward a bold goal: to prevent blood cancer before it starts. And we’re getting closer than I ever imagined possible.

Because RUNX1-FPD is rare, few pharmaceutical or biotech companies are willing to invest in clinical trials for this community. That’s why we’ve stepped in. We’re currently supporting three promising trials to give families real options—hope backed by science. We’re also working hard to raise funds to also cover out-of-pocket costs so more patients can participate.

To date, I’ve connected with more than 440 patients, and we estimate there are up to 18,000 people in the U.S. who have RUNX1-FPD but don’t yet know it.

If interested, you can read more about why I feel this effort is so important: https://www.runx1-fpd.org/runx1-pulse/new-clinical-trials-offer-hope-and-opportunity

With your help, we can support patients in participating in these trials and get closer to life without blood cancer.

Please consider donating—every bit helps.

Thank you for being part of this effort.